Skip to content
marcodelfrate's profile image - click for profile

Marco Del Frate's Fundraiser:

Running for Jessica

Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
Marco's Photo
 

Marco Del Frate via Crowdrise
February 17, 2011

Donate $ for each mile I run in the Oakland Half Marathon March 27. $1 per mile is a $13 donation! Please Donate so I don't run for nothing!  See more
Marco Del Frate

THE STORY:

In the fall of 2008, Jessica Ann Bucher (born August 7, 1996) was diagnosed with Sandhoff's Disease, a genetic autosomal recessive disorder caused by a deficiency of two important enzymes resulting in the accumulation of certain fats and sugars in the neurons of the brain.  This accumulation causes the neurons to die off and leads to the deterioration of the central nervous system.  This is a life threatening disease.  

Approximately 20 new cases of Sandoff's Disease are diagnosed per year in the United States.  The family's only hope to save Jessica's life was an experimental clinical trial Stem Cell transplant, recommended by doctors at the Duke University Medical Center in Durham, North Carolina, one of the only places in the nation if not the world that is able to successfully perform this type of procedure.  Jessica's parents, Adam and Cindy, had to pick up and move to North Carolina with little to no preparation.  

Jessica's initial transplant was completed in January 2009 with three more years of follow-up care after her return home to California in August 2009.  

As you can imagine, your help is desperately needed.  Please donate here with Running for Jessica.  Thank you

DONATE

To This Fundraiser

$52

MONEY RAISED
  • John Ghiorso

    $26

  • Marco Del Frate

    $26

  •  
  •  
  •  
 

5% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $52 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Marco Del Frate

Amount Raised

$52

 

5% Raised of $1,000 Goal

Fundraiser Title

John Ghiorso

Amount Raised

$0

Donor Comments

Marco Del Frate

Marco Del Frate

DONATION: $26

6 years ago

John Ghiorso

John Ghiorso

DONATION: $26

6 years ago