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naomi trevor's Fundraiser:

Running for my brother

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BENEFITING: COALITION TO CURE CALPAIN 3

ORGANIZER: Zoë

naomi trevor

THE STORY:

Zoë Gamble wrote -

My amazing big brother Kev was finally diagnosed with Limb Girdle Muscular Dystrophy 2A (calpainopathy) in his 20s. The condition involves a progressive weakening of the muscles, and there is no cure. It is heartbreaking to see him struggle to do the things the rest of us take for granted like walking, getting up off a chair, or climbing stairs. Within just a few years, I have seen my big brother go from being able to chase and pick up his little sister, to needing a stick to walk, and being unable to play properly with his own daughter. Eventually, Kev will be forced into a wheelchair as his degenerating muscles can no longer support him. Because his condition is rare, there is very little being done to search for a cure. This is why I am supporting Coalition to Cure Calpain 3, the only charity to raise money specifically for Kev's condition. I am going to run the Cardiff University World Championship Half Marathon on March 26th 2016 for my brother. You may know that I am not a runner, and the nearest I have been to running in a long time is to get a bus! I have a tough few months ahead of me if I want to finish the half marathon. But I'm going to do do it one way or another, because I'm doing it for someone who can't. Please donate whatever you can in support of Coalition to Cure Calpain 3, Many thanks Zoë x

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