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National Organization for Rare Disorders, Inc.'s Fundraiser:

Running for Rare—Boston Marathon

National Organization for Rare Disorders, Inc.'s Photo

THE STORY:

For the ninth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. 

Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH).

Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities.

The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$87,725

MONEY RAISED
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  • Weissel Family

    $100

  • Sanofi Match (Heather Mariani)

    $200

  • Alan, Sharon, Shosh & Nate

    $50

  • Sanofi Matching Gift - Paul McGuire

    $100

  • Sanofi Matching Gift - Claire Moroney

    $262

  • John, Carol and Megan Burdick

    $100

  • Colin and Sue Burdick

    $25

  • Michele McKay

    $50

  • Lauren and Gary Smith

    $250

  • George Contalonis

    $25

  • Monkey Boy Dan

    $100

  • Anonymous

    $50

  • Anonymous

     

  • Don Bach

    $25

  • Amber and Andy Robbins

    $100

  • Ginger & Todd Beaupre

    $50

  • Anne O'Connor Smith

    $100

  • Sarah is a STAR - fan club

     

  • Lauriemguzzi@gmail

    $25

  • Jennifer, Mike & Olivia

    $50

  • Sarah Batchelder

     

  • Anonymous

    $50

  • Kaplan Family

     

  • Mark Underwood

    $100

  • Melissa Wasserstein

    $100

  • Dana Berntsen

    $50

  • Lena Deaibes

    $25

  • Sprouse

    $100

  • The O'Connor Family

    $25

  • Piya Sircar

    $25

  • Dan Villone

    $25

  • Keith DesFosses

     

  • Heather Gould

    $100

  • Marika Skiadas

    $25

  • The Gaibor Family

    $75

  • Christina and Jimmy Ford

    $100

  • Marie Nardi

     

  • Anonymous

    $35

  • Colleen Perella

    $25

  • Liz Michaels

    $50

  • The Kings of Basin

     

  • Sarah Bailey

    $25

  • Optum/UnitedHealthcare matching gift

     

  • Cory Smith

     

  • Sanofi Company Match

     

  • Sanofi Match 14

    $50

  • Sanofi Match 15

    $50

  • Sanofi Matching Gift - Patti Nardi

    $50

  • Carolyn Ball - LC

    $150

  • Rob & Karin

    $100

  • Virginia Connolly

    $25

  • Sanofi Matching Gift - CB/LC

    $150

  • Anonymous

     

  • Michelle and Fred

    $50

  • Anonymous

    $100

  • Adam Hansard

    $25

  • Terry McGuinness

    $25

  • Steve McLaughlin

    $50

  • Sanofi Company Match

    $50

  • Joe and Darlene U.

    $50

  • Sanofi Match (David Haris)

    $50

  • Sanofi Match (Randall Porcella)

    $100

  • Sanofi Match (David Houle)

    $50

  • Sanofi Match (Jay Desilets)

    $100

  • Sanofi Match (Marissa Poole)

    $60

  • SIrkka and Bob Moore

    $100

  • Anonymous

    $25

  • Sanofi Match 16

    $100

  • Kurt and Lianna Swanson auction

    $25

  • Anonymous

     

  • Jen Melanson

    $20

  • Anonymous

     

  • Silent Auction Winner - Michelob Snowboard

    $75

  • Silent Auction Winner - Russell House Tavern & Urban Grape Gift Cards

    $45

  • Jack Prior

    $105

  • Heather Schmidt

    $50

  • Frank Webbe

    $100

  • Missy Green

    $100

  • Praveen Bahadduri

    $25

  • Claire Walsh

    $20

  • 50/50 Raffle and Paintbar

    $536

  • Anonymous

     

  • Julie-Susan Michaud

    $25

  • Paul Driscoll

    $15

  • Paul Driscoll

    $25

  • Anonymous

    $50

  • Kathy White

    $15

  • Carolyn Ball - R4R auction item

    $15

  • Sanofi Company Match

     

  • Silent Auction Winner - CD Sets

    $20

  • Snofi Matching for M Reynolds

    $163

  • Mom and Dad

    $100

  • Lora

    $250

  • prajwal karmacharya

    $210

  • American Tower Company Match for C Regan

     

  • Sanofi Company Match

    $250

  • Lori Charie

    $65

  • Silent Auction

    $175

  • John Furtado

    $125

  • Sanofi Genzyme Matching Gift

    $5,000

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135% Raised of $65,000 Goal

The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

Sanofi Genzyme Matching Gift

Sanofi Genzyme Matching Gift

DONATION: $5,000

2 years ago

John Furtado

John Furtado

DONATION: $125

Silent Auction 2 years ago

Silent Auction

Silent Auction

DONATION: $175

2 years ago

Lori Charie

Lori Charie

DONATION: $65

2 years ago

Sanofi Company Match

Sanofi Company Match

DONATION: $250

2 years ago

American Tower Company Match for C Regan

American Tower Company Match for C Regan

2 years ago

prajwal karmacharya

prajwal karmacharya

DONATION: $210

For Bug and Salam 2 years ago

Lora

Lora

DONATION: $250

2 years ago

Mom and Dad

Mom and Dad

DONATION: $100

2 years ago

Snofi Matching for M Reynolds

Snofi Matching for M Reynolds

DONATION: $163

2 years ago