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Carolyn Ball's Fundraiser:

Running for Rare—Boston Marathon

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Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn Ball

THE STORY:

I am honored and humbled to be given the opportunity to run my first Boston Marathon in support of patients with Rare Diseases.  My patient partner, Katie (in the picture on the left!), has Prader-Willi Syndrome which is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior.  (See http://www.pwsausa.org/).  Katie is an amazing kid, awesome at jigsaw puzzles and pretty good scorer on the basketball court!  Through the NORD Running for Rare team, we are raising funds for the NIH undiagnosed diseases fund to help patients and families like Katie's get an early diagnosis which is so critical for effective disease management (and treatment where available).  More details about NORD are below.  THANK YOU for considering a donation!  Regards, Carolyn

National Organization for Rare Disorders, Inc. wrote -

For the ninth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. 

Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH).

Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities.

$7,624

MONEY RAISED
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  • Carolyn Ball

    $500

  • Janie M

     

  • Anonymous

    $50

  • Aunt Barbara and Uncle Ed

    $50

  • Auntie Tricia

     

  • Lavinia & Lisa

    $100

  • Prajwal (PK)

    $145

  • Tonia Chu

    $100

  • Alison Morgan-Wilkes

    $50

  • The Amorin Family

    $100

  • Missy

     

  • Anonymous

    $150

  • Sanofi Matching Gift - Wally Amorin

    $100

  • Sanofi Matching Gift - PK

    $145

  • Jack Prior

    $50

  • Sanofi Matching Gift - Jack Prior

    $50

  • Mustafa Family

    $50

  • Eric Powers

    $50

  • Thanks for running for Rare Disease

    $50

  • Dan & Madolyn

     

  • Sanofi Matching Gift - Eric Powers

    $50

  • Sanofi Matching Gift - anonymous

    $150

  • Mike Dorgan

    $100

  • Chris & Ed

    $50

  • Martin Daly

    $50

  • The Carey Family

    $50

  • Sanofi Matching Gift - Carolyn Ball

    $500

  • Sanofi Matching Gift - Jane Mansfield

    $250

  • Virginia Mullen

    $20

  • Lisa and Mike Sullivan

    $25

  • Sam and Joey

    $100

  • Stephen & Lynn

    $50

  • Runne family

    $25

  • Uncle Dave & Aunt Sandra

    $50

  • Laurel Ainslie

    $100

  • Patti

     

  • Anonymous

    $100

  • Shaun O'Neil

     

  • Teresa McLean

    $50

  • Mike Dowling

    $100

  • P. McGuire

    $100

  • Sanofi Matching Gift - Shaun O'Neil

    $50

  • Mike Ski

    $25

  • Judy Monroe

    $25

  • Sanofi Matching Gift - anonymous (2)

    $100

  • Minnie Zhou & her daughter Cissy Gao

    $250

  • Dianne Murphy

    $25

  • The Kelleys

    $50

  • Lutz

    $250

  • Lekas Family

    $65

  • Sanofi Matching Gift - Monique Lutz

    $250

  • Sanofi Matching Gift - Laurel Ainslie

    $100

  • Sanofi Matching Gift - Jim Lekas

    $65

  • Anonymous

    $100

  • Tim Enterline

    $100

  • Kees Weijer

    $40

  • Annick

    $50

  • Hans-Peter

    $100

  • Bill Kibit

     

  • Sanofi Matching Gift - Mike Dowling

    $100

  • Anonymous

    $50

  • Brian Murphy

    $25

  • Claire

    $262

  • josh

    $100

  • Carmel Moroney

    $35

  • Sanofi Matching Gift - Tonia Chu

    $100

  • Katie Farmer

    $50

  • Sanofi Matching Gift - Suman Sharma

    $50

  • kaara

     

  • AC

     

  • Sanofi Matching Gift - Paul McGuire

    $100

  • Sanofi Matching Gift - Claire Moroney

    $262

  • Mark Underwood

    $100

  • Sanofi Matching Gift - Patti Nardi

    $50

  • Carolyn Ball - LC

    $150

  • Sanofi Matching Gift - CB/LC

    $150

  • Heather Schmidt

    $50

  • Claire Walsh

    $20

  • Lori Charie

    $65

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152% Raised of $5,000 Goal

The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

Lori Charie

Lori Charie

DONATION: $65

2 years ago

Claire Walsh

Claire Walsh

DONATION: $20

2 years ago

Heather Schmidt

Heather Schmidt

DONATION: $50

2 years ago

Sanofi Matching Gift - CB/LC

Sanofi Matching Gift - CB/LC

DONATION: $150

2 years ago

Carolyn Ball - LC

Carolyn Ball - LC

DONATION: $150

2 years ago

Sanofi Matching Gift - Patti Nardi

Sanofi Matching Gift - Patti Nardi

DONATION: $50

2 years ago

Mark Underwood

Mark Underwood

DONATION: $100

2 years ago

Sanofi Matching Gift - Claire Moroney

Sanofi Matching Gift - Claire Moroney

DONATION: $262

2 years ago

Sanofi Matching Gift - Paul McGuire

Sanofi Matching Gift - Paul McGuire

DONATION: $100

2 years ago

AC

AC

2 years ago