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Justin Hopkin's Fundraiser:

Running for Rare—Boston Marathon

Justin's Photo
Justin's Photo
 

Race day
April 17, 2016

Thank you all for donating to NORD in the name of Patrick and Garrett. With your generosity, we surpassed our fundraising goal. It will be a  See more
Justin Hopkin

THE STORY:

I am honored to be part of the Running for Rare Disorders team this year.  I will be running my first marathon in Boston (go BIG or go home) on April 18 to raise awareness and money for an excellent cause. To help me with this task, I have recruited 2 amazing partners.

Pictured with me on the main page is my first patient partner, Patrick and his companion dog, Bindy.  This picture was taken after we all had breakfast at Syrup in Denver where Patrick told me about his struggles with Cyclic Vomiting Syndrome, a disease he has been living with for many years.  With the help of Bindy and a lot of courage, Patrick and his family are managing this frustrating disease admirably.

My other patient partner is my son, Garrett.  Garrett has Niemann Pick Disease/ASMD.  Garrett continues to thrive despite being the underdog against an unforgiving opponent.  

Both of my partners have shown incredible strength in the face of uncurable diseases.  I am proud to be running the Boston Marathon on the Running for Rare Disorders team in their names.  Please help the 3 of us raise funds for NORD to support the NORD NIH Undiagnosed Diseases Program (UDP). As many rare disease patients must endure a long odyssey before finally receiving an accurate diagnosis, the entire Running for Rare Diseases team is passionate about enabling early diagnosis for those living with mysterious, rare conditions.

Every donation counts!  Thank you!!

$7,222

MONEY RAISED
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  • Nathan and Lisa Rieb

    $500

  • The Oland Family

     

  • The family of Sylvia Schneider

     

  • Katy Lysinger

     

  • Marlena Carey & family

    $100

  • Mark and Sophie

     

  • Kim Bronhard

     

  • John and Amy Boyle

    $100

  • Leslie Calkins

    $250

  • Deanna trumble

    $50

  • Drew and Joanne Dierking

     

  • Leanna

    $25

  • reber family

    $100

  • sprouse

    $250

  • Cox Family..Jason, Brittany, Afton and Grace

     

  • The Richards Family

    $100

  • In memory of Quinn Madeleine Linzer

    $100

  • Hampton family

     

  • Rod and Gwen Cox

    $250

  • Teresa Stevens

     

  • Jamie, Ryan, Treven and Kennedy Bernard

     

  • Jodi Pederson

    $100

  • Fixter Family

    $100

  • Brian and Jill Clark

    $100

  • Air Controls CO Billings MT

    $250

  • Andy Shannon

    $25

  • Anonymous

    $100

  • Morton Family

     

  • Scott and Lori Carlson

    $100

  • Dave and Deb Phipps

    $250

  • The Ramirez Family

    $25

  • EGGLI FAMILY...DAN, ELLIE, JOELIE & HENRIK

     

  • Becky & Bob Hawkins

     

  • Firth Family

     

  • Lynne Meadows

    $25

  • Brinda Family

    $200

  • Joel & Diane Newquist

    $100

  • Mom and Dad

     

  • Sally and Dave Slovisky

    $50

  • Anonymous

     

  • Fred and Sherrie

     

  • Samantha & Eric Dunham

    $25

  • Marci Kaplan

    $50

  • Bill and Sue Lee

    $100

  • ILN

    $50

  • Cathy Johnson

     

  • Atilano's

    $25

  • Jana and Jeff

    $50

  • Weaver Family

    $100

  • The Bryants

    $100

  • Paul and Kelly Berkram

    $250

  • Anne and Matt Koster

    $50

  • Ryck and Margie Pedersen

    $100

  • Bainter Family

    $250

  • Go Justin!

    $100

  • Lucy and Dennis Cone

     

  • Amber and Andy Robbins

    $100

  • Kaplan Family

     

  • Sprouse

    $100

  • The Kings of Basin

     

  • Steve McLaughlin

    $50

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144% Raised of $5,000 Goal

The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

Steve McLaughlin

Steve McLaughlin

DONATION: $50

2 years ago

The Kings of Basin

The Kings of Basin

2 years ago

Sprouse

Sprouse

DONATION: $100

Whoooooooooo hoooooooo!!!!! Go get'em!!!! 2 years ago

Kaplan Family

Kaplan Family

Thank you for running for Patrick, the CVS community, and for being such a great Patient Partner! 2 years ago

Amber and Andy Robbins

Amber and Andy Robbins

DONATION: $100

2 years ago

Lucy and Dennis Cone

Lucy and Dennis Cone

Go Justin! 2 years ago

Go Justin!

Go Justin!

DONATION: $100

2 years ago

Bainter Family

Bainter Family

DONATION: $250

Go get 'em! 2 years ago

Ryck and Margie Pedersen

Ryck and Margie Pedersen

DONATION: $100

2 years ago

Anne and Matt Koster

Anne and Matt Koster

DONATION: $50

Go Team Garrett and Justin 2 years ago