Skip to content
kyriakoseconomides's profile image - click for profile

Kyriakos Economides' Fundraiser:

Running for Rare—Boston Marathon

Kyriakos' Photo
Kyriakos' Photo
Kyriakos' Photo
 

RACE COMPLETED
April 20, 2016

The 2016 Boston Marathon was pure misery: My feet hurt, my knees hurt, and with the gels I was taking during the run, my reflux was acting up,  See more
Kyriakos Economides

THE STORY:

Dear Friends and Family,

Imagine for a minute going to the doctor and having him tell you that you have high cholesterol, let’s say 220, with an LDL (the “bad” cholesterol) level of 160, and that you should do something about it; maybe diet and exercise, maybe a prescription for statins. That is a reality that millions face every year, but it’s quite common and usually manageable if the correct steps are taken.

Now imagine that you are 17 years old, or 20, or 25. Imagine that you are athletic, and eat the right foods. Now you are told that your cholesterol is greater than 600. And that number is for the LDL only! This is a reality that a Homozygous Familial Hypercholesterolemia (FH) patient faces. Even heterozygous FH patients can show plasma cholesterol levels of >230 as children. The effects of this disease can be devastating, with young men and women requiring heart surgery and stent placement to restore sufficient blood-flow to the heart, physical rehabilitation and statin therapy.

This year I am running the Boston Marathon  in partnership with two inspiring young people who are affected by FH; Christian, who is a 23 year-young college student, who had stents implanted to unclog two major arteries to the heart, and Max, a local 9 year-young boy who had cholesterol levels in the 800s upon diagnosis.  I am part of a team (Running 4 Rare) who are  running to raise money for the National Organization for Rare Disorders (NORD) NIH Undiagnosed Diseases Program (UDP).  As many rare disease patients must endure a long odyssey before finally receiving an accurate diagnosis, the entire Running for Rare Diseases team is passionate about enabling early diagnosis for those living with mysterious, rare conditions. I have a fundraising goal of $5000.00 for this effort.

How you can help:

  1. Donation: A donation will go a long way, and any donation to NORD is tax deductible. Moreover, you have the ability to allocate the money to specific rare disorders, which can stimulate research for specific rare diseases. To facilitate fundraising we have set up a team page and personal fundraising page for the Running For Rare team. My page can be found here:

https://www.crowdrise.com/runningforrarediseas/fundraiser/kyriakoseconomides

  1. Company Match: Many companies have a matching gifts program. Please make the extra effort to take advantage of this extra funding to potentially double your donation! Also, please let me know if you are applying for a company match so that I can apply this to my fundraising goal.
     
  2. Get the word out: Please forward this to friends and family who may want to contribute, and help people who are suffering from rare diseases get the support and research funding that is desperately needed!

Thank you for your time!

Kyriakos

Alone we are rare. Together we are strong.

 

 

National Organization for Rare Disorders, Inc. wrote -

Marathon runners and rare disease community members team up to support all 7,000 rare diseases and help undiagnosed patients find answers. The funds raised for NORD will support the NORD NIH Undiagnosed Diseases Program (UDP). As many rare disease patients must endure a long odyssey before finally receiving an accurate diagnosis, the entire Running for Rare Diseases team is passionate about enabling early diagnosis for those living with mysterious, rare conditions.

$6,382

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Mike Rosenstark

     

  • Amy Frederick and Barbara Fyrberg

     

  • Eppendorf

     

  • Karen Plantinga

     

  • Rick Gregory

    $50

  • Vijay

     

  • Danilo G

     

  • Tahir Majid

    $100

  • Juventas

     

  • Ken Munroe

    $50

  • Dave C

     

  • Economides Family

     

  • The Karas Family

     

  • Holly and Adrian

     

  • Kim Lebicz

    $100

  • Bum

    $50

  • Tara

    $25

  • Mike and Kelly

    $50

  • Lori Karas

     

  • Valerie Frank

     

  • The Bruntons

     

  • Tina Alonso

    $100

  • Muthu Madialagan

     

  • Amy Descarreaux

    $50

  • Sanofi Company Match

     

  • Patricia Retalic-Phipps

    $100

  • Sanofi Match 1

    $50

  • Sanofi Match 2

    $50

  • Sanofi Match 5

    $50

  • Sanofi Match 4

    $50

  • Sanofi Match 3

    $100

  • Eric, Gina and Theo

    $50

  • MyAwards Donation - KE

    $50

  • Team Guest

    $50

  • The Girotto Family

    $25

  • Adam Karas & Colleen Keller

    $25

  • Hutchison Family

     

  • Jennifer & Xavier S.

    $20

  • AZ

    $20

  • Theodore Family

    $25

  • Donna and Diane

     

  • Cordero Family

    $25

  • John & Marilyn Nelson

    $100

  • A. Paragios

     

  • Aherne Family

     

  • Annie & Dan

    $25

  • ACB

    $50

  • Madonna Sanpei

    $50

  • Marquis

     

  • Joni

     

  • The Costa Family

    $50

  • Anonymous

     

  • Tai-he Xia

    $100

  • Sanofi Match 6

     

  • Sam Rao

    $50

  • MyAwards Donation - Match

    $50

  • Anna, Brian, Lia and Rachel

    $25

  • Brenda, Bryan and Jenna Daigle

    $25

  • Mark Karas & Andrea Berman

    $100

  • Joe and Kim Blois

     

  • Jennifer McCarthy

    $50

  • Petti Pang

    $25

  • Sanofi Match 7

    $50

  • Sanofi Match 8

    $100

  • Sanofi Match 9

    $100

  • Paula Boutin

    $50

  • Fran & Howard Karas

     

  • Ellie and Steve

    $40

  • Rijul, Daniela & Praveen

    $50

  • Eric Pahler

    $25

  • Butch and Donna Chaffer

    $100

  • Rick and Terry Pahler

    $50

  • Larry and Stephanie

    $50

  • Sanofi Match 11

    $50

  • Sanofi Match 10

    $50

  • max

    $100

  • Cat Davis and Salman Ahmed

    $50

  • Cat Davis and Salman Ahmed

    $50

  • Sanofi Match 12

    $50

  • A.P.D.

    $50

  • George T

     

  • Kristy Dwyer

    $25

  • Sanofi Match 13

    $50

  • Andrew Bush

     

  • Susan Decker

    $100

  • Chrysanthi Regan

     

  • Juanita Campos

    $50

  • Mary Dimitrakis family

    $25

  • Bindu Nambiar

    $50

  • Alan, Sharon, Shosh & Nate

    $50

  • Marika Skiadas

    $25

  • Sanofi Match 15

    $50

  • Sanofi Match 14

    $50

  • SIrkka and Bob Moore

    $100

  • Sanofi Match 16

    $100

  • American Tower Company Match for C Regan

     

  •  
  •  
  •  
 

128% Raised of $5,000 Goal

The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

American Tower Company Match for C Regan

American Tower Company Match for C Regan

2 years ago

Sanofi Match 16

Sanofi Match 16

DONATION: $100

2 years ago

SIrkka and Bob Moore

SIrkka and Bob Moore

DONATION: $100

Well Done! 2 years ago

Sanofi Match 14

Sanofi Match 14

DONATION: $50

2 years ago

Sanofi Match 15

Sanofi Match 15

DONATION: $50

2 years ago

Marika Skiadas

Marika Skiadas

DONATION: $25

2 years ago

Alan, Sharon, Shosh & Nate

Alan, Sharon, Shosh & Nate

DONATION: $50

2 years ago

Bindu Nambiar

Bindu Nambiar

DONATION: $50

2 years ago

Mary Dimitrakis family

Mary Dimitrakis family

DONATION: $25

So proud of you Kirk :) 2 years ago

Juanita Campos

Juanita Campos

DONATION: $50

2 years ago