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Martha Stapels' Fundraiser:

Running for Rare—Boston Marathon

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Martha Stapels

THE STORY:

I am so honored and excited to be running in the 2016 Boston Marathon to raise money for the National Organization for Rare Disorders (NORD). My patient partner this year is Sarah, who is a strong voice for the fibromuscular dysplasia community. As we’ve gotten to know each other, I’ve been inspired by her strength, resilience, and positive attitude. To learn more about FMD, you can read up about it here (http://rarediseases.org/rare-diseases/fibromuscular-dysplasia) or on http://www.fmdchat.net/

Marathon runners and rare disease community members team up to support all 7,000 rare diseases and help undiagnosed patients find answers. The funds raised for NORD will support the NORD NIH Undiagnosed Diseases Program (UDP). As many rare disease patients must endure a long odyssey before finally receiving an accurate diagnosis, the entire Running for Rare Diseases team is passionate about enabling early diagnosis for those living with mysterious, rare conditions.

$5,885

MONEY RAISED
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  • Saanchi B

    $50

  • Michelle Busch

    $50

  • Anonymous

    $100

  • Katy Nash

    $50

  • Anna Park

    $50

  • Lindsay Johnson

    $75

  • Jen Fournier

    $25

  • Sanofi Match

    $54

  • Sanofi Match

    $53

  • Sanofi Match

    $54

  • Carin

    $25

  • Sarah Kucharski

    $29

  • St John S

     

  • Anonymous

    $250

  • Sa'adiyah Masoud

    $100

  • Pavlina

    $50

  • Anonymous

     

  • Sanofi Match

    $563

  • Anonymous

    $25

  • Sanofi Match

    $50

  • Anonymous

    $150

  • Roxana

    $50

  • Petra Oliva

    $150

  • The Cottons

    $50

  • Sanofi Match

    $50

  • Lisa wood

    $50

  • A, C & Julia

    $50

  • Cooper Family

    $50

  • Tom Wheat

    $50

  • Muffie Wheat

    $25

  • Diana

    $25

  • Matching gift

    $150

  • Melissa Neufell

    $50

  • Sanofi Match

    $163

  • Sanofi Match

    $50

  • Jonah and Amelia Stapels

    $100

  • Anonymous

    $50

  • Sanofi Match

    $54

  • Paula Lynch

    $50

  • Genzyme Sanofi, Rare Disease Day event

    $1,437

  • Monica Lane

    $50

  • Sanofi Match

    $50

  • Xiaoying Jin

    $100

  • Jo & Ken

     

  • Pam Luc

    $50

  • Jim Langridge

    $50

  • 50/50 Raffle and Paintbar

    $536

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118% Raised of $5,000 Goal

The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

50/50 Raffle and Paintbar

50/50 Raffle and Paintbar

DONATION: $536

2 years ago

Jim Langridge

Jim Langridge

DONATION: $50

2 years ago

Pam Luc

Pam Luc

DONATION: $50

2 years ago

Jo & Ken

Jo & Ken

2 years ago

Xiaoying Jin

Xiaoying Jin

DONATION: $100

2 years ago

Sanofi Match

Sanofi Match

DONATION: $50

2 years ago

Monica Lane

Monica Lane

DONATION: $50

2 years ago

Genzyme Sanofi, Rare Disease Day event

Genzyme Sanofi, Rare Disease Day event

DONATION: $1,437

2 years ago

Paula Lynch

Paula Lynch

DONATION: $50

2 years ago

Sanofi Match

Sanofi Match

DONATION: $54

2 years ago