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prajwal karmacharya's Fundraiser:

Running for Rare—Boston Marathon

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prajwal karmacharya

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the ninth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. 

Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH).

Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities.

The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

$5,424

MONEY RAISED
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  • Lora Moore

    $145

  • Marilou Lonsdale

    $25

  • Linda Wu

    $25

  • Donald Martin

    $100

  • Sanofi Match (Lora Moore)

    $145

  • Prabin Dhar

    $50

  • Bryan & Alicia Musk

    $30

  • Labina Shrestha

    $30

  • Michelle Santiago

    $50

  • Anonymous

    $100

  • Anonymous

    $50

  • Mike Ski

    $25

  • Genzyme Sanofi, Rare Disease Day event

    $2,844

  • Kathy Schwartz

    $25

  • Melissa Neufell

    $50

  • Rena Baek

    $30

  • Kurt and Lianna Swanson

    $60

  • Randall Porcella

    $100

  • Carolyn Ball (fundraiser ticket)

    $30

  • Babesh and Liz

     

  • Lora Moore and David Hardy

    $60

  • Marissa Poole

    $60

  • Mike ski

    $15

  • John Kane

    $30

  • David Harris

    $50

  • Kathleen Hobbs

    $100

  • Heather Mariani

    $200

  • Sanofi Match (Heather Mariani)

    $200

  • George Contalonis

    $25

  • Anonymous

    $50

  • Jennifer, Mike & Olivia

    $50

  • Sanofi Match (David Haris)

    $50

  • Sanofi Match (Randall Porcella)

    $100

  • Sanofi Match (David Houle)

    $50

  • Sanofi Match (Jay Desilets)

    $100

  • Sanofi Match (Marissa Poole)

    $60

  • prajwal karmacharya

    $210

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The Team: $87,725 TOTAL RAISED SO FAR

Fundraiser Title

Carolyn Ball

Amount Raised

$7,624

 

152% Raised of $5,000 Goal

Fundraiser Title

Justin Hopkin

Amount Raised

$7,222

 

144% Raised of $5,000 Goal

Fundraiser Title

Maureen McLaughlin

Amount Raised

$6,860

 

137% Raised of $5,000 Goal

Fundraiser Title

Kyriakos Economides

Amount Raised

$6,382

 

128% Raised of $5,000 Goal

Fundraiser Title

Lora Moore

Amount Raised

$6,344

 

127% Raised of $5,000 Goal

Fundraiser Title

Sarah Batchelder

Amount Raised

$6,175

 

124% Raised of $5,000 Goal

Fundraiser Title

Sarah Yang

Amount Raised

$5,887

 

118% Raised of $5,000 Goal

Fundraiser Title

Martha Stapels

Amount Raised

$5,885

 

118% Raised of $5,000 Goal

Donor Comments

prajwal karmacharya

prajwal karmacharya

DONATION: $210

For Bug and Salam 2 years ago

Sanofi Match (Marissa Poole)

Sanofi Match (Marissa Poole)

DONATION: $60

2 years ago

Sanofi Match (Jay Desilets)

Sanofi Match (Jay Desilets)

DONATION: $100

2 years ago

Sanofi Match (David Houle)

Sanofi Match (David Houle)

DONATION: $50

2 years ago

Sanofi Match (Randall Porcella)

Sanofi Match (Randall Porcella)

DONATION: $100

2 years ago

Sanofi Match (David Haris)

Sanofi Match (David Haris)

DONATION: $50

2 years ago

Jennifer, Mike & Olivia

Jennifer, Mike & Olivia

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

2 years ago

George Contalonis

George Contalonis

DONATION: $25

Shane Contalonis 2 years ago

Sanofi Match  (Heather Mariani)

Sanofi Match (Heather Mariani)

DONATION: $200

2 years ago