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Emma Rooney's Fundraiser:

Running for Rare—TCS New York City Marathon & Hartford Half Marathon

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A Rare Evening
November 29, 2016

Thank you so much for helping me reach my $3,000 fundraising goal as part of the 2016 Running for Rare Team!  This past Saturday friends of  See more
Emma Rooney

THE STORY:

I'm running in the upcoming New York City Marathon as part of the Running for Rare Team. I was diagnosed with a rare genetic disease called Gaucher (type 1) at the age of three. Despite the challenges of living with a chronic condition, I know that having the correct diagnoses has given me a shot at a healthy life, with access to specialized care and life changing treatment.

Many rare disease patients struggle for years to get an accurate diagnosis and this is why I'm running in support of NORD’s Undiagnosed Diseases Network (UDN) Patient Assistance Program. This program provides financial assistance to families who have exhausted all other alternatives for seeking a diagnosis. The UDN is coordinated out of the Department of Biomedical Informatics at Harvard Medical School and involves leading medical facilities across the United States but the impact of this important research is global and deserving of our support.

On November 6th, I'll be running for my community partner Jen who also lives with a rare disease (hypoparathyroidism). I'm running for Gaucher disease (type 1, 2 and 3), for hypoparathyroidism, and for all those still seeking the correct diagnoses. Please support my run. #weruntogether 

DONATE

To This Fundraiser

$3,490

MONEY RAISED
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  • Anonymous

    $300

  • Kaitlin

     

  • Killoran Family Thanksgiving

     

  • LC

    $70

  • Deane & Judy Collinson

    $50

  • National Gaucher Foundation of Canada

     

  • Micheila

     

  • Andrew Scholte

     

  • Cyndi Frank & Lars Asbjornsen

     

  • Charles Goodman

    $25

  • Glenn Katz

     

  • Anonymous

    $25

  • Phillip Maderia

    $30

  • Sanofi Match

    $50

  • Nathan Killoran

    $150

  • Roshel Sachdeva

    $50

  • Sanofi Match - J. Prior

    $50

  • Sami Mouaket

    $100

  • Anonymous

    $25

  • Jon Beale

    $15

  • Fundraiser at Sandbox

    $1,671

  • Giving Tuesday Contribution

    $50

  • Post Event Contributions

    $134

  • Giving Tuesday Keeps Giving

    $75

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116% Raised of $3,000 Goal

The Team: $31,224 TOTAL RAISED SO FAR

Fundraiser Title

Phillip Maderia

Amount Raised

$3,681

Fundraiser Title

Nicole Casale

Amount Raised

$3,575

 

119% Raised of $3,000 Goal

Fundraiser Title

Emma Rooney

Amount Raised

$3,490

 

116% Raised of $3,000 Goal

Fundraiser Title

Andrew Scholte

Amount Raised

$3,212

 

107% Raised of $3,000 Goal

Fundraiser Title

Kristin Clubbs

Amount Raised

$3,176

 

106% Raised of $3,000 Goal

Fundraiser Title

Kate Bartlett

Amount Raised

$3,026

 

101% Raised of $3,000 Goal

Fundraiser Title

Roger Maderia

Amount Raised

$3,001

Fundraiser Title

Katherine Rogers

Amount Raised

$1,050

 

117% Raised of $900 Goal

Donor Comments

Giving Tuesday Keeps Giving

Giving Tuesday Keeps Giving

DONATION: $75

6 months ago

Post Event Contributions

Post Event Contributions

DONATION: $134

6 months ago

Giving Tuesday Contribution

Giving Tuesday Contribution

DONATION: $50

6 months ago

Fundraiser at Sandbox

Fundraiser at Sandbox

DONATION: $1,671

6 months ago

Jon Beale

Jon Beale

DONATION: $15

6 months ago

Anonymous

ANONYMOUS

DONATION: $25

6 months ago

Sami Mouaket

Sami Mouaket

DONATION: $100

6 months ago

Sanofi Match - J. Prior

Sanofi Match - J. Prior

DONATION: $50

6 months ago

Roshel Sachdeva

Roshel Sachdeva

DONATION: $50

6 months ago

Nathan Killoran

Nathan Killoran

DONATION: $150

6 months ago