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Qraig de Groot's Fundraiser:

Running for Samantha

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Qraig's Photo
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Qraig de Groot

THE STORY:

I'm running the New York City Marathon this year in memory of my niece, Samantha Del Grosso. She passed away in 2008 after battling the effects of Alström Syndrome for the entire 17 years of her life.

According to the Alström Syndrome International website (www.alstrom.org), "Alström Syndrome is a rare hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. We currently have identified nearly 800 individuals with Alström Syndrome in fifty four different countries and maintain an ongoing patient registry. Alström Syndrome can affect people of all nationalities, ethnic groups, and races."

Since Alström Syndrome is so rare, many people haven't even heard about it. And this means funding is extremely limited. My hope is to raise  money to help other families affected by Alström Syndrome and thereby keeping the spirit of my niece, Samantha alive in our hearts and minds forever.

**(From alstrom.org) Alström Syndrome International depends entirely upon the support and generosity of individuals, corporations and foundations to fund its many programs and research initiatives. Your tax deductible contribution means so much to the patient community and to the organization whose work is dedicated to their future. On behalf of all those individuals and their families who will benefit from Alström Syndrome research, we thank you very much for your help.

$2,362

MONEY RAISED
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  • Jessica Zack

    $50

  • The Del Vecchio Family

    $26

  • Pam and Chris Tosto

    $75

  • Claire and Bill Finley

    $100

  • Tracy,Wayne and Karley Del Grosso

    $100

  • Robin and Jan Marshall

    $50

  • Colin and Ian Smith

    $100

  • Kevin and Kevin Finley

    $100

  • Bob and Dolores Freidenrich & Bio Compression Systems

    $500

  • Casey, Cheryl, Anna DeGroot and Bula the Dog

    $26

  • Tony & Sarah

    $150

  • The Tyler Family

    $50

  • Courtney, Ryan, Lyle & Lenny Welch

    $50

  • Dianna F

     

  • Rosa Pietanza

     

  • Anonymous

     

  • Mark Covey

    $50

  • Teresa Pivarnik

     

  • Olga Elhajjar

    $25

  • The Beautiful Blond- M.G.

    $25

  • Carole Villoresi

     

  • Mathew Bergman

     

  • Karine M.

     

  • Anonymous

    $50

  • Shui Wong

     

  • Emilie Blay

     

  • bik chung

     

  • Ritu W

    $25

  • Twin

    $20

  • Paul Chymiy

     

  • Babs De Groot

    $100

  • Jamey Welch

    $50

  • The Dean / Kounouklos family

    $50

  • Diane Loud

     

  • Ron Bansky

     

  • Mike, Margie, Alex and Ian Sheppard

    $50

  • Anonymous

    $50

  • Louis Impellizeri

    $50

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472% Raised of $500 Goal

Fundraise for this Campaign

The Team: $2,362 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Louis Impellizeri

Louis Impellizeri

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $50

5 years ago

Mike, Margie, Alex and Ian Sheppard

Mike, Margie, Alex and Ian Sheppard

DONATION: $50

5 years ago

Ron Bansky

Ron Bansky

5 years ago

Diane Loud

Diane Loud

5 years ago

The Dean / Kounouklos family

The Dean / Kounouklos family

DONATION: $50

5 years ago

Jamey Welch

Jamey Welch

DONATION: $50

5 years ago

Babs De Groot

Babs De Groot

DONATION: $100

For my granddaughter... 5 years ago

Paul Chymiy

Paul Chymiy

5 years ago

Twin

Twin

DONATION: $20

5 years ago