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Kenny Heine's Fundraiser:

Running for Tripp and EB Awareness

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Kenny Heine via Crowdrise
February 01, 2012

Thanks to all who have donated!!!  See more

BENEFITING: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

ORGANIZER: Scott

EVENT DATE: Mar 04, 2012

Kenny Heine

THE STORY:

Scott Walker wrote -

I'm running the Rock 'n' Roll Half Marathon on March 4 in New Orleans in memory of Tripp Roth, to heighten EB awareness and to raise money for DebRA of America - the Dystrophic Epidermolysis Bullosa Research Association.

Please help bring me bring attention to this horrible disease.

Tripp was born May 14, 2009. He died on January 14, 2012.

Tripp, who lived with his mother in Ponchatoula, was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin caused painful blisters. Doctors said he wouldn't live to be a year old. He made it two-and-a-half years before losing his long, brave battle.

But the fight in his honor continues.


You can read more about Tripp's journey here: http://www.randycourtneytripproth.blogspot.com.

ANYONE WHO WOULD LIKE TO JOIN MY TEAM (YOU DON'T HAVE TO RUN) AND RAISE MONEY FOR EB AWARENESS, CAN EMAIL ME AT SCOTTWALKER@HEARST.COM.  

DONATE

To This Fundraiser

$330

MONEY RAISED
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  • Ryan

    $30

  • Raye

    $50

  • Susan, Jack and Will

    $50

  • Cindy and Charlotte

    $50

  • mary beth hymel

    $50

  • papa g

    $50

  • Albert

    $50

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Fundraise for this Campaign

The Team: $45,400 TOTAL RAISED SO FAR

Fundraiser Title

Scott Walker

Amount Raised

$34,558

 

115% Raised of $30,000 Goal

Fundraiser Title

Chris Audler

Amount Raised

$1,855

 

37% Raised of $5,000 Goal

Fundraiser Title

Ethan Murray

Amount Raised

$1,405

Fundraiser Title

Melanie Foster

Amount Raised

$1,075

 

72% Raised of $1,500 Goal

Fundraiser Title

DIANNE COTHERN

Amount Raised

$755

Fundraiser Title

Sarah Hammell

Amount Raised

$560

 

56% Raised of $1,000 Goal

Fundraiser Title

Susan James

Amount Raised

$500

Fundraiser Title

Jenny Finnerman

Amount Raised

$400

Donor Comments

Albert

Albert

DONATION: $50

6 years ago

papa g

papa g

DONATION: $50

6 years ago

mary beth hymel

mary beth hymel

DONATION: $50

6 years ago

Cindy and Charlotte

Cindy and Charlotte

DONATION: $50

Wow to go, Kenny!!! 6 years ago

Susan, Jack and Will

Susan, Jack and Will

DONATION: $50

6 years ago

Raye

Raye

DONATION: $50

Great cause Kenny! Thanks for running for EB awareness! 6 years ago

Ryan

Ryan

DONATION: $30

6 years ago