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Matthew W's Fundraiser:

Running for Tripp and EB Awareness

Matthew's Photo
Matthew's Photo
Matthew's Photo
Matthew's Photo
Matthew's Photo
Matthew's Photo
Matthew's Photo

BENEFITING: Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

ORGANIZER: Scott

EVENT DATE: Mar 04, 2012

Matthew W

THE STORY:

Scott Walker wrote -

I'm running the Rock 'n' Roll Half Marathon on March 4 in New Orleans in memory of Tripp Roth, to heighten EB awareness and to raise money for DebRA of America - the Dystrophic Epidermolysis Bullosa Research Association.

Please help bring me bring attention to this horrible disease.

Tripp was born May 14, 2009. He died on January 14, 2011.

Tripp, who lived with his mother in Ponchatoula, was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin caused painful blisters. Doctors said he wouldn't live to be a year old. He made it two-and-a-half years before losing his long, brave battle.

But the fight in his honor continues.


You can read more about Tripp's journey here: http://www.randycourtneytripproth.blogspot.com.

ANYONE WHO WOULD LIKE TO JOIN MY TEAM (YOU DON'T HAVE TO RUN) AND RAISE MONEY FOR EB AWARENESS, CAN EMAIL ME AT SCOTTWALKER@HEARST.COM.  

DONATE

To This Fundraiser

$135

MONEY RAISED
  • Sarah "Mimi" Sky

    $100

  • Matty's Mom

    $25

  • Jamie Gann

    $10

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Fundraise for this Campaign

The Team: $45,400 TOTAL RAISED SO FAR

Fundraiser Title

Scott Walker

Amount Raised

$34,558

 

115% Raised of $30,000 Goal

Fundraiser Title

Chris Audler

Amount Raised

$1,855

 

37% Raised of $5,000 Goal

Fundraiser Title

Ethan Murray

Amount Raised

$1,405

Fundraiser Title

Melanie Foster

Amount Raised

$1,075

 

72% Raised of $1,500 Goal

Fundraiser Title

DIANNE COTHERN

Amount Raised

$755

Fundraiser Title

Sarah Hammell

Amount Raised

$560

 

56% Raised of $1,000 Goal

Fundraiser Title

Susan James

Amount Raised

$500

Fundraiser Title

Jenny Finnerman

Amount Raised

$400

Donor Comments

Jamie Gann

Jamie Gann

DONATION: $10

6 years ago

Matty's Mom

Matty's Mom

DONATION: $25

In honor of my own beautiful son, Matthew Richardson Whipple. He has made me deliriously happy and proud to be a mom from the moment he was born. I call him "the gift child." Always proud of you, Matthew, and of your loving, caring heart. I'll be there to watch you run! Mamasita 6 years ago

Sarah

Sarah "Mimi" Sky

DONATION: $100

In memory and honor of that gorgeous little angel, Tripp...and his precious Momma. How wonderful that this little sweetheart was placed in her loving care for his brief time on earth...there's nothing like a child to make you feel true love. This baby's suffering makes my heart hurt so much. Little Tripp touched the lives of all who knew him either directly or indirectly and they will never be the same...Tripp was flawless, cherished and will be remembered. God had a special purpose and plan for sweet Tripp, and bless his baby heart, he fulfilled it. God has allowed me to be a grandmother of three darlings and my heart overflows with love for them. To love a child is to love like nothing else. I wish I could have known Tripp; from the photos, it is evident that, despite his terrible pain, like all babies, he was a joy! I add my tears and send my very deepest condolences to his Momma and family... …in honor of Justin, Joshua, and Haviland 6 years ago