Scott Walker wrote -
I'm running the Rock 'n' Roll Half Marathon on March 4 in New Orleans in memory of Tripp Roth, to heighten EB awareness and to raise money for DebRA of America - the Dystrophic Epidermolysis Bullosa Research Association.
Please help bring me bring attention to this horrible disease.
Tripp was born May 14, 2009. He died on January 14, 2011.
Tripp, who lived with his mother in Ponchatoula, was diagnosed with a rare genetic skin disease called "EB." Any type of friction on his skin caused painful blisters. Doctors said he wouldn't live to be a year old. He made it two-and-a-half years before losing his long, brave battle.
But the fight in his honor continues.
You can read more about Tripp's journey here: http://www.randycourtneytripproth.blogspot.com.
ANYONE WHO WOULD LIKE TO JOIN MY TEAM (YOU DON'T HAVE TO RUN) AND RAISE MONEY FOR EB AWARENESS, CAN EMAIL ME AT SCOTTWALKER@HEARST.COM.