6 months ago I moved to New York and decided to start training for the 2014 NYC marathon, which I saw mainly as a challenging personal goal.
Unfortunately, while I was training hard for this long run, a person very close to me was diagnosed with a rare neurodegenerative disease called Frontotemporal Dementia (FTD). FTD typically strikes at an earlier age than Alzheimer's (45-65) and affects the part of the brain that controls speech, personality and judgment (rather than memory). It is fatal and there is no known cure. Many patients with FTD also develop ALS or other motor-neuron diseases, which only accelerates their deterioration. FTD is a horrible disease that robs people of what makes them "them."
Running the marathon is now giving me the chance to offer my contribution to raise awareness of FTD and hopefully raise some funds that will go to The Association for Frontotemporal Degeneration (www.theaftd.org). Their goal is to support patients, families, and caregivers, as well as fund research to one day find a cure.
So please donate what you can and cheer me on November 2nd, I promise I will give it all.