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WHERE THERES A WILL THERES A CURE's Fundraiser:

Run the Blue Grass for Will-Cure

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THE STORY:

The Will-Cure Team is proud to be participating in this year’s Run The Blue Grass 2016. We welcome you to join and support our Will-Cure Team as we raise awareness and funds for Myotubular Myopathy. Where There’s a Will There’s a Cure (Will-Cure) is a 501(c)(3) charitable organization with the sole purpose of raising funds to support medical research for Myotubular Myopathy. Myotubular Myopathy is a rare genetic disease with clinical manifestations of severe muscle weakness. Although there are variants, most children affected will never crawl or walk and will require breathing assistance. Only 2 out of 10 of children with MTM will live past the first year of life and only 1% survive beyond the age of ten. Our dream is to find a cure and we need your help. Any support you can provide can truly make a difference. Researchers have conducted promising pre-clinical trials research for potential treatments for Myotubular Myopathy. Your donation will go toward the funding needed to advance this medical research. We are excited to be at the doorstep of new hope for our children and families affected by this disease. But your help is crucial. We invite you to join in our efforts and contribute in any way possible. Go Team Will-Cure!

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The Team: $0 TOTAL RAISED SO FAR

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WHERE THERES A WILL THERES A CURE is working on selecting a charity so you can support Run the Blue Grass for Will-Cure.