EVENT DATE: May 05, 2013
I have been working as part of the Internal Audit Group at the Cystic Fibrosis Foundation for about two and a half years and it continues to be a rewarding experience every day. We all share in one mission – to find better treatments and ultimately a cure for CF.
Many of you may not know much about cystic fibrosis, so here are a few facts. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. In CF patients, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. Many experience digestive issues as this mucus also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF.
Last year, the FDA approved a drug called Kalydeco. The CF Foundation is proud to have played an important role in the research and development of Kalydeco — the first drug to treat the underlying cause of cystic fibrosis. This drug marks a historic breakthrough for the entire CF community, and the science behind the drug has opened exciting new doors to research and development that may eventually lead to a cure for all people living with CF. While Kalydeco’s approval represents real progress toward a cure, the lives of young people with CF are still cut far too short. We urgently need the your continued support to fulfill our mission to find a cure for CF and to improve the quality of life for all those with the disease!
Discoveries such as these would not be possible without the overwhelming support of volunteers and donors like you! Any amount you can contribute to help support this cause is greatly appreciated. Thanks for all of your support!
Please take a moment to watch Drew's story:
If you still need some inspiration, watch local Pitt alumni talk about how CF has affected their lives: