25% and counting...
March 21, 2016
BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
First of all, thanks for taking the time to check out my fundraising page. I'm running the Pittsburgh Marathon Relay for the Cystic Fibrosis Foundation for the 3rd year.
It's a cause close to me, as my friend Emily, has CF. You'd never know it though. I've known Emily since I was about 8. Our moms have worked together for over 20 years. I remember my mom talking about all these medications Emily had to take, but she never "looked" sick. As a kid, that's how you gauge a friend's health.
Emily turned 29 last fall, and she's still that "kid that you would never know is sick." Emily runs on our Run to Cure CF team and has run several half-marathons with her sister. (If you don't know what CF is or how it affects her, read on.) She's such an inspiration, and I'm proud to call her my friend. Please consider a donation, large or small, to help us make CF stand for Cure Found!
From Emily: I was diagnosed with Cystic Fibrosis (CF) when I was 6 months old, and have been living and fighting the disease every day of my life. CF is a genetic, life-shortening disease that affects 30,000 adults and children in the United States and 70,000 worldwide, causing irreversible damage to the lungs and digestive system.
When I was born, the average life expectancy for those with CF was about 25 years. In November, I turned 29 – since turning 25 I’ve run a leg (or two) of the Pittsburgh Marathon three years in a row with some incredible friends and completed three half marathons alongside my older sister, and I have no intention of slowing down any time soon.
I've been fortunate enough to lead a relatively healthy 29 years, in large part due to the great strides the CF Foundation and research community have made in advancing the care of those affected by the disease. CFF is considered one of the most efficient organizations of its kind, and nearly every penny of each dollar donated goes toward one goal: finding a cure. The great news is that we've never been closer to that goal. I believe the disease will be cured in my lifetime, but we're not there yet. Your help is needed now, more than ever.
More about our Run to Cure CF Team from the CF Foundation: Help Us Find a Cure.
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF