BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
CYSTIC FIBROSIS FOUNDATION
Audrey Burgoon, Coach for Run To Cure CF Team
I was honored to be the Coach for the Run To Cure CF Team for the 2015 Pittsburgh Marathon. We had a passionate and powerful Team who were not going to be satisfied with the bare minimum! They trained hard and this Team knew that they were taking steps -literrally!! -- to help cure Cystic Fibrosis. Our Team was the highest fundraising team of all the Charity teams at the Pittsburgh Marathon.
We are working off our 2015 momentum to build an even bigger and more powerful Team at the 2016 Pittsburgh Marathon. I couldn't be happier to be back to train another group of individuals to complete an endurance event while they are also raising money to help cure CF.
In the almost 10 years that I have been running, I've raised almost $100,000 for various charties. I love to run, and I love to help others to improve their running or to reach a goal of completing an endurance event. But what drives me the most is running for a reason. I would be so grateful for your support as I continue to lead the Run To Cure CF Team! It would mean so much to me.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.