BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
The Cystic Fibrosis Foundation is very important to me as I have watched my younger brother Christopher battle this disease since he was 18 months old. Now he's 23, a graduate student studying Pharmacy and is one of the best in his class. He also tutors and does research on breast cancer. That alone makes him an amazing person, but what you don't see is all the struggles he hides behind the scene- the coughing, the pain, the 50+ pills per day, the hours of breathing treatments and shaking by the vest, continually losing weight no matter how much you eat.
You would never know any of that when you meet the smart, caring, nice guy with the big smile. He doesn't look sick, but he feels sick. But he works hard and has accomplished so much, including two half marathons!! Last year and this year he has been too sick to run, so I am running for him. Please consider even a small donation, it all makes a difference.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF
$100 - Kid's Marathon
$200 - 5K
$1,500 - Relay Team
$400 - Half Marathon
$500 - Full Marathon
Fundraising minimums must be met by April 29, 2015. Once you register through Team CF on Crowdrise, within one week you will receive a confirmation e-mail from the Pittsburgh Marathon verifying your registration.
Don't think you can meet your fundraising minimum? Contact Lauren DiMaria at firstname.lastname@example.org or 412-321-4422 to set up your fundraising plan and guarantee your race spot today!
All Run to Cure CF team members will receive*
Run to Cure CF Gender Specific Performance Tee
Volunteer Led Group Training Runs
Coach provided Training Plans and Tips