BENEFITING: CYSTIC FIBROSIS FOUNDATION (inactive)
ORGANIZER: CYSTIC FIBROSIS FOUNDATION (inactive)
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
I have heard about Cystic Fibrosis throughout my life but never knew anyone personally that had it. Until I met my boyfriend's son, Liam Jeffrey. Liam is the reason I run for the Cystic Fibrosis Foundation.
Liam is an amazing little boy. He absolutely loves Thomas the Train (actually he lives any train!) and coming in at a close second is watching funny cat videos on YouTube! He loves playing with his cousins, his dogs Carlos and Gracie, and his cats Spencer and Lucy. He enjoys playing with play-doh, using his imagination when playing with his building blocks, remote control cars, and reading books. He has this cheesy smile and full-of-life laugh that just fills his family and loved ones with joy!
He has been extremely fortunate since being diagnosed with Cystic Fibrosis to be asymptomatic and healthy. He wakes up everyday, puts on his vest to do his chest PT and does it again before he goes to sleep. It's not always easy getting him to put his vest on and do his chest PT, but he's too young to understand that this metal box that makes lots of noise and beats on his chest like a drum is helping to keep him healthy. I remember the first time my boyfriend Curtis taught me how to do chest PT with my hand before his machine came into the picture and I felt like I was hurting him by hitting his chest on the front and back. I later realized after doing my own research about Cystic Fibrosis that this was a necessity. We needed to prevent the mucus from building up in his lungs.
We are so grateful everyday for the miracle known as Liam, because he gives us hope that we can overcome anything as long as we continue to fight! His family and I will always fight for Liam and support the Cystic Fibrosis Foundation because without the dedication of those who fight everyday for a cure and better treatment options...we don't know where Liam would be at today.
Liam Jeffrey... you are an inspiration to us all and our lives are all better because you're a part of it! We look forward to watching grow each and every day and thanks to those dedicated individuals at the Cystic Fibrosis Foundation your future is now full of endless possibilities; instead of impossiblities.
We love you Liam Jeffrey to the moon and back!