BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
To understand why I’m doing this, you need to know my lovely wife.
Danielle has Cystic Fibrosis, she grew up constantly battling this disease. She had it fairly easy compared to some children with CF. Her battle started to amp up once she reached her 20’s. Coughing became more intense, exercise was not an easy task due to breathing difficulties, and she was becoming resistant to antibiotics that she had been taking for years.
She got tough and put on a show for everybody, but she was struggling, hurting, and getting exhausted with the everyday battle.
In September 2010 we got married, but by the end of the year her coughing became so forceful that her ribs were cracking. Two months later she was in the hospital, things were bad. She would not come out of the hospital the same. Her lungs had failed, I was blindsided. We do what we have to for the ones we love, and the doctors do what’s best, even when you have your doubts.
She received a double lung transplant. She had a lengthy road of recovery, but she’s a fighter (everybody with CF is). Recovery was well worth it, she was stronger than ever. She started doing Zumba, where she’s a rock star among her Zumbettes.
Years go by, things are going well. Out of the blue, she gets sick. This is unlike any sickness we had dealt with before. She has a blood infection and her kidneys begin failing. Things look very bad. Antibiotics and dialysis start right away.
Once again, Danielle does not come out of the hospital the same. She now has dialysis three days a week. Painful needles, hours of her day stuck to a machine, and stress…
What can I do? I’m emotional support, a shoulder to cry on, but what real help can I be?
Help me make a difference for Danielle and everyone else battling this disease. Let’s fund the research to find a cure.
I’m going to endure 26.2 miles of running; I will not stop battling since my wife cannot stop battling.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
Danielle is 32 years old, but I want to make sure she lives well past the median age and then some! Help me make CF stand for Cure Found!!