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Jim Sinegal's Fundraiser:

Cystic Fibrosis Foundation - 2016 Run to Cure CF

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BENEFITING: CYSTIC FIBROSIS FOUNDATION

ORGANIZER: CYSTIC FIBROSIS FOUNDATION

EVENT: Pittsburgh Marathon 2016

EVENT DATE: May 01, 2016

Jim Sinegal

THE STORY:

Hi everyone!

Thanks for sponsoring me in my first half-marathon.  The CFF is a cause close to my heart.  My wife, Tammi, was born with CF and wasn't expected to make it to high school graduation.   Thanks to the research funded by the CFF, her giant heart, 3 organ donors, and some great doctors she's continuing to blow by expectations.   

The CFF is an effective, efficient, and innovative organization, here's some information on them and their efforts if you're interested:

http://www.wsj.com/articles/cystic-fibrosis-foundation-sells-drugs-rights-for-3-3-billion-1416414300

http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=9142#.VowXS8YrLcs

Thanks again for your generosity,

Jim 

 

 

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Statistics

About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.

The Cystic Fibrosis Foundation

Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.

Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org

Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF

 

$6,042

MONEY RAISED
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  • Penny and Mel

    $50

  • Anonymous

    $500

  • David Lloyd and Jeremy Glaser

    $150

  • Shelly Sambiase

    $25

  • M.Bendekovic's

    $50

  • Kristin Porter

    $10

  • Kim Soltis

    $20

  • Anonymous

    $50

  • Janet

    $50

  • Tara & Chaz

    $25

  • The Stolars

    $25

  • Carrie G

    $10

  • Debbie & Kevin Gusty

    $25

  • Judy McKeg

    $10

  • Channing Rollo

    $100

  • Oliver & Amy Tatom

    $25

  • Jill

     

  • Christine

    $100

  • Guidry Family

    $150

  • Flannery

    $100

  • Caleb, Leeann & Chloe Austin

    $100

  • Doug

    $25

  • tiffany and cheryl

    $25

  • Katie

    $20

  • Linda Kaminski

    $25

  • Ketah Doty

    $25

  • Abbey

    $50

  • Esther fleet

    $50

  • Danni and Mikie Krek

    $50

  • Ralph & Cathy Black

    $25

  • Mercedes

    $25

  • Jim & Tammi

    $500

  • Ann & Ryan

     

  • Teri, Craig, Elli-Belly and Apollo!

    $100

  • Kathryn, Christopher & Michael Francis

    $50

  • Stacey Hoover

    $25

  • Debbie Sinegal

    $50

  • Lauren Stone

    $25

  • Shannon Ramous

     

  • Cara Golish Hartle

    $50

  • DebFields

    $25

  • Cassie Appleman

     

  • Sara Hazel

    $50

  • Lisa Poppe Adams

    $25

  • Andia, Kyle, & Ivy Grice

    $50

  • Ashley Carlson

    $25

  • Elke Knupp

    $100

  • Joe

    $50

  • Kim Barone Soltis

     

  • Steve Plusquellic

    $50

  • Meg Torres

    $25

  • Marcie & Bob Beam

    $25

  • Jeef

    $100

  • Barbara and Roy atkinson

    $100

  • Bill, Dana, and Ashton

    $50

  • Adam & Christina Weitzel

    $100

  • Becky Datta

     

  • S. Ofthackle

    $25

  • Liz Arlet Crawford

     

  • Dominique Robinson

    $250

  • Pamela Rovello

    $25

  • Carrie Tremper

    $30

  • Jonathan & Diane

     

  • Joe Joe Coffee Jim

    $25

  • Ontherise

    $50

  • Mark and Tammy Prior

    $100

  • Butch & Bernie Krek

    $25

  • Carol Garland

    $25

  • Patsy Pearce

    $50

  • Erin Richey

    $20

  • Anonymous

     

  • Lauren, Shawn, Cailyn and Claire

    $10

  • Mike & Christy

    $25

  • Pippi Krashtable

    $25

  • Marisa Charley

    $10

  • Sydney Willig

    $50

  • Nora Olson

    $50

  • Aunt Claudia and Uncle Ken

    $25

  • Shannon McMaster

    $50

  • Aunt Lou

    $25

  • Anonymous

     

  • Jean Steenson

    $100

  • Valerie Testa

    $25

  • Colin Ginty

     

  • Tom Fleet. (Dad)

    $50

  • Matt and Jennifer Steenson

     

  • David and Jen Griffith

     

  • Stephie

    $50

  • Judy and Phil Ventimiglia

    $50

  • Jackie and Dave Swigart

    $25

  • Dan Werner

    $25

  • Jeannie and Everton

    $100

  • Patricia Chulack

    $20

  • Mark & Maria Ludwiczak

    $20

  • Thomas & Janice Blackburn

    $100

  • Abigail Sinegal

    $25

  • Bright Funds

    $500

  • Bright Funds Match

    $27

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121% Raised of $5,000 Goal

Fundraise for this Campaign

The Team: $166,112 TOTAL RAISED SO FAR

Fundraiser Title

Hannah Camic

Amount Raised

$16,680

 

111% Raised of $15,000 Goal

Fundraiser Title

Audrey Burgoon

Amount Raised

$10,889

 

91% Raised of $12,000 Goal

Fundraiser Title

Andrew Sutryn

Amount Raised

$6,525

 

326% Raised of $2,000 Goal

Fundraiser Title

Jim Sinegal

Amount Raised

$6,042

 

121% Raised of $5,000 Goal

Fundraiser Title

Brittany Buzzelli

Amount Raised

$5,200

 

104% Raised of $5,000 Goal

Fundraiser Title

Janice Magee

Amount Raised

$4,560

 

456% Raised of $1,000 Goal

Fundraiser Title

Mary Kathleen Whittemore

Amount Raised

$4,075

 

116% Raised of $3,500 Goal

Fundraiser Title

Sean Gaffney

Amount Raised

$3,099

 

103% Raised of $3,000 Goal

Donor Comments

Bright Funds Match

Bright Funds Match

DONATION: $27

9 months ago

Bright Funds

Bright Funds

DONATION: $500

1 year ago

Abigail Sinegal

Abigail Sinegal

DONATION: $25

1 year ago

Thomas & Janice Blackburn

Thomas & Janice Blackburn

DONATION: $100

1 year ago

Mark & Maria Ludwiczak

Mark & Maria Ludwiczak

DONATION: $20

1 year ago

Patricia Chulack

Patricia Chulack

DONATION: $20

1 year ago

Jeannie and Everton

Jeannie and Everton

DONATION: $100

1 year ago

Dan Werner

Dan Werner

DONATION: $25

1 year ago

Jackie and Dave Swigart

Jackie and Dave Swigart

DONATION: $25

1 year ago

Judy and Phil Ventimiglia

Judy and Phil Ventimiglia

DONATION: $50

Always glad to support Shelly and her best friend! 1 year ago