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Julie Weber's Fundraiser:

Cystic Fibrosis Foundation - 2016 Run to Cure CF

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BENEFITING: CYSTIC FIBROSIS FOUNDATION

ORGANIZER: CYSTIC FIBROSIS FOUNDATION

EVENT: Pittsburgh Marathon 2016

EVENT DATE: May 01, 2016

Julie Weber

THE STORY:

This will be my 4th year running the half marathon for Kaelyn.  I run because it's become part of my fight each year to help end Cystic Fibrosis and raise the funds needed to bring us closer to a cure.  The race has become something that Kaelyn looks forward to me to doing each year and she is my on-going motivation to cross the finish line and keep pushing to bring awareness to her disease.

Not only have I been a participant in race weekend over the years, but Kaelyn will be running her 2nd Kids of Steel marathon.  Running and exercise are actually very beneficial to those with CF.

Our family has been so grateful for the outpouring of support over the years in our fight to end CF.   We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line!  Without your support and generosity, we wouldn't be closer than ever to the cure that those with CF desperately need.  Please consider helping us reach our goal again this year!

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Statistics

About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.

The Cystic Fibrosis Foundation

Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.

Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org

Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF

Fundraising Minimums:

$100 - Kid's Marathon
$200 - 5K
$1,500 - Relay Team
$400 - Half Marathon
$500 - Full Marathon

$1,595

MONEY RAISED
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  • Rachelle Edwards

    $50

  • Rost Family

    $25

  • Debbie Bier

     

  • Arianna Collins

    $25

  • Verscharen Family

    $30

  • Natalie Olup

    $25

  • Amber & Bob

    $40

  • Ashley Brown & Family

    $25

  • Anthony Tranquilli & Steven Evanitz

    $25

  • Christina King

    $50

  • Maggie O'Neill

    $50

  • Marc and Megan

    $20

  • Brandon V

    $25

  • Dave Meldrum

    $50

  • Rachel, Mike, Jon, Ryan, JD, Steve, E, Jack, Tommy

    $115

  • Kelly Ponterio

    $25

  • Meghan Myers

    $25

  • Jessica Ziemski

    $25

  • Melissa, Demond & Girls

    $25

  • Desmond Crytzer & Family

    $50

  • Dave Sladky

    $100

  • Patty weber

    $50

  • Chris, Valerie & Giovanni

    $25

  • Craig Thornton

     

  • EJ Greco

    $25

  • Christine Nelson

    $25

  • REV Squad

    $125

  • Jamie Snyder

    $25

  • Amy Pascarella

    $50

  • Rosedale Technical College

    $150

  • Kayla LeMessurier

    $25

  • Tom and Marlo Vena

    $100

  • Anonymous

    $25

  • George Cox

    $40

  • Cathy Romaniecki

    $50

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160% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $166,112 TOTAL RAISED SO FAR

Fundraiser Title

Hannah Camic

Amount Raised

$16,680

 

111% Raised of $15,000 Goal

Fundraiser Title

Audrey Burgoon

Amount Raised

$10,889

 

91% Raised of $12,000 Goal

Fundraiser Title

Andrew Sutryn

Amount Raised

$6,525

 

326% Raised of $2,000 Goal

Fundraiser Title

Jim Sinegal

Amount Raised

$6,042

 

121% Raised of $5,000 Goal

Fundraiser Title

Brittany Buzzelli

Amount Raised

$5,200

 

104% Raised of $5,000 Goal

Fundraiser Title

Janice Magee

Amount Raised

$4,560

 

456% Raised of $1,000 Goal

Fundraiser Title

Mary Kathleen Whittemore

Amount Raised

$4,075

 

116% Raised of $3,500 Goal

Fundraiser Title

Sean Gaffney

Amount Raised

$3,099

 

103% Raised of $3,000 Goal

Donor Comments

Cathy Romaniecki

Cathy Romaniecki

DONATION: $50

1 year ago

George Cox

George Cox

DONATION: $40

1 year ago

Anonymous

ANONYMOUS

DONATION: $25

In support of Julie and Kaelyn 1 year ago

Tom and Marlo Vena

Tom and Marlo Vena

DONATION: $100

1 year ago

Kayla LeMessurier

Kayla LeMessurier

DONATION: $25

1 year ago

Rosedale Technical College

Rosedale Technical College

DONATION: $150

1 year ago

Amy Pascarella

Amy Pascarella

DONATION: $50

1 year ago

Jamie Snyder

Jamie Snyder

DONATION: $25

1 year ago

REV Squad

REV Squad

DONATION: $125

1 year ago

Christine Nelson

Christine Nelson

DONATION: $25

For my granddaughter, Kaelyn Weber 1 year ago