BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
This May, I will be running a FULL freakin' marathon. That's right -- 26.2 grueling miles. Why? Because I'm crazy, of course. But I also want to make life better for a lot of people.
I am running the Pittsburgh Marathon on behalf of the Cystic Fibrosis Foundation -- a highly efficient non-profit organization dedicated to improving the lives of individuals with Cystic Fibrosis and their families.
CF is a complicated disease, but let me summarize it for you: It sucks. The disease steadily destroys the lungs by promoting permanent scarring, all the while wreaking havoc on regulatory and digestive systems. CFers spend hours everyday enduring rigorous therapies and popping pill after pill just to function. There is always the real threat of contracting serious airway infections by simply interacting with their environments, and those infections can lead to costly hospital stays and long-term treatment with potent, often exhausting, and sometimes dangerous antibiotics.
How do I know so much about CF? Nearly 70,000 people worldwide have the disease, including my boyfriend, Tim. Through him, I see firsthand how different life with CF is, how often the chronic disease shapes his lifestyle, and how incredibly painful and frustrating it can be.
However, we both know how lucky he is. Through the work of the CFF, the quality of life for someone with CF has increased dramatically in just a few years. The money raised by the foundation has not only helped families cover the colossal costs of care -- much of it has been directly invested into the development of new drugs like Kalydeco and Orkambi, which actually treat the root of the disease rather than just its symptoms and have made a huge difference in the lives of many with CF, Tim included.
The CFF has been behind breakthrough after breakthrough with regard to unravelling CF. With continued support, we can cure the disease.
Together, we can leave CF in the dust.
CYSTIC FIBROSIS FOUNDATION wrote -
Help Us Find a Cure.
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF
$100 - Kid's Marathon
$200 - 5K
$1,500 - Relay Team
$400 - Half Marathon
$500 - Full Marathon
Fundraising minimums must be met by April 29, 2015. Once you register through Team CF on Crowdrise, within one week you will receive a confirmation e-mail from the Pittsburgh Marathon verifying your registration.
Don't think you can meet your fundraising minimum? Contact Lauren DiMaria at firstname.lastname@example.org or 412-321-4422 to set up your fundraising plan and guarantee your race spot today!
All Run to Cure CF team members will receive*
Run to Cure CF Gender Specific Performance Tee
Volunteer Led Group Training Runs
Coach provided Training Plans and Tips