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Kayla Dames' Fundraiser:

Cystic Fibrosis Foundation - 2016 Run to Cure CF

Kayla's Photo
Kayla's Photo
Kayla's Photo

BENEFITING: (inactive)

ORGANIZER: (inactive)

EVENT: Pittsburgh Marathon 2016

EVENT DATE: May 01, 2016

Kayla Dames

THE STORY:

After playing basketball all through college I never thought that I would be running a full marathon. I always dreaded the awful conditioning days and the long runs to get in to shape, but now I look forward to getting outside on my long run days and working towards my next goal. This journey has been the most rewarding and stressful experience at age 23. Every time I think this journey is hard, the CF patients I am running for always put it back into perspective for me. I think about how they are struggling to breathe on a daily basis and never complain; so why should I complain for something that I should be grateful to be able to do? This always gives me the motivation to keep going.

I am running to support my brother-in-law Dave who I have known for 10 years and not only is he the love of my sister’s life, but a big brother to me as well. My whole family has been a big part in his life as we all learn to understanding CF and finding ways to help him through it. After seeing the treatments and medicine that Dave has to do every day, makes me realize how much I want to help this condition. Raising money for CF will not only help Dave but all people affected by CF.

Having CF is incredibly difficult, but for young kids it is even more difficult because it can make a child self conscious, especially since kids are sensitive to being made fun at an early age. Dave has always had to take pills before every meal and go to the nurse numerous times a day to get his inhaler while at school. During nap time at school, Dave never wanted to lie down because he would start coughing and he would be afraid everyone would hear him and ask why he was coughing. When a child wants to go sleep over at a friend’s house, they usually just take a sleeping bag and pajamas. A child with CF may not be able to even experience a sleep over at a friend’s house since they have to do an evening treatment and medications. Children with CF also commonly miss a lot of school because of all of the doctor’s appointments.  They may also miss school because getting even the common cold is worse for CF patients. Even to this day Dave has to go to the doctors every 3 months for a checkup.

Once a child affected by CF hits high school they start to want to date and it could be hard to have that conversation with the person you are dating. Dave told my sister after they were dating for 2 years. He explained why he coughed frequently and he wanted her to know about CF and all that comes with it. My sister never even questioned the illness, and she accepted it. She wanted to help him in any way she could.

Dave is doing amazing today at age 26. You would never even know that he has CF. Dave has played hockey since he was 6 years old. He even became captain in high school which is very unlikely for CF patients since they do not breathe well while doing physical activity, but Dave never let anything hold him back. He continues to play hockey and workout every day. He is currently a nurse because he wants to help other people as much as possible.

Please help support and raise money for all of those affected by CF.

I want to run the marathon to support the ones who think about breathing every day.

 

 

CYSTIC FIBROSIS FOUNDATION wrote -

Help Us Find a Cure.

Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!

We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Statistics

About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.

The Cystic Fibrosis Foundation

Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.

Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org

Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF

Fundraising Minimums:

$100 - Kid's Marathon
$200 - 5K
$1,500 - Relay Team
$400 - Half Marathon
$500 - Full Marathon

Fundraising minimums must be met by April 29, 2015.  Once you register through Team CF on Crowdrise, within one week you will receive a confirmation e-mail from the Pittsburgh Marathon verifying your registration.

Don't think you can meet your fundraising minimum?  Contact Lauren DiMaria at ldimaria@cff.org or 412-321-4422 to set up your fundraising plan and guarantee your race spot today!

All Run to Cure CF team members will receive*

Run to Cure CF Gender Specific Performance Tee
Volunteer Led Group Training Runs
Coach provided Training Plans and Tips
Fundraising Incentives
Fundraising Guide

$1,120

MONEY RAISED
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  •  
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  •  
  • Brock Witkowski

    $50

  • Amanda Dames

    $50

  • Amanda Dames

    $50

  • Bev and Andrew Dames

    $100

  • Aunt Sherry

     

  • Dave and Pam Aldridge

    $50

  • The LeDonne's

    $25

  • Ruth Kudrik

     

  • Donation

    $20

  • Jeff & Rita Burkey

    $100

  • Roz & Frank Shimko

     

  • Jessica

    $25

  • David Burkey

    $100

  • AEO Match

    $100

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The Team: $166,112 TOTAL RAISED SO FAR

Fundraiser Title

Hannah Camic

Amount Raised

$16,680

 

111% Raised of $15,000 Goal

Fundraiser Title

Audrey Burgoon

Amount Raised

$10,889

 

91% Raised of $12,000 Goal

Fundraiser Title

Andrew Sutryn

Amount Raised

$6,525

 

326% Raised of $2,000 Goal

Fundraiser Title

Jim Sinegal

Amount Raised

$6,042

 

121% Raised of $5,000 Goal

Fundraiser Title

Brittany Buzzelli

Amount Raised

$5,200

 

104% Raised of $5,000 Goal

Fundraiser Title

Janice Magee

Amount Raised

$4,560

 

456% Raised of $1,000 Goal

Fundraiser Title

Mary Kathleen Whittemore

Amount Raised

$4,075

 

116% Raised of $3,500 Goal

Fundraiser Title

Sean Gaffney

Amount Raised

$3,099

 

103% Raised of $3,000 Goal

Donor Comments

AEO Match

AEO Match

DONATION: $100

2 years ago

David Burkey

David Burkey

DONATION: $100

I'm honored that you chose to run for CF, it means so much to me. I want to wish you the best of luck on your run and I can't wait to see you cross that finish line. I couldn't be more proud to have you as a sister in law. Its amazing how much you have already accomplished and how much you have raised for this cause. I cant thank you enough! GOOD LUCK!! 2 years ago

Jessica

Jessica

DONATION: $25

2 years ago

Roz & Frank Shimko

Roz & Frank Shimko

2 years ago

Jeff & Rita Burkey

Jeff & Rita Burkey

DONATION: $100

Thanks for choosing to run for CF. It means a lot to us. Good Luck!! 2 years ago

Donation

Donation

DONATION: $20

2 years ago

Ruth Kudrik

Ruth Kudrik

2 years ago

The LeDonne's

The LeDonne's

DONATION: $25

2 years ago

Dave and Pam Aldridge

Dave and Pam Aldridge

DONATION: $50

2 years ago

Aunt Sherry

Aunt Sherry

Good Luck Kayla A great cause 2 years ago