BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
Must every superhero have a weakness?
Our 6 year old daughter loves dressing up as a superhero. One day it's Batman, the next it's Spiderman or Captain America. We have a box in her play room brimming with dress-up gear: capes, masks, and plastic super weapons. She's ready to save the world; all she needs is a reason.
Sadly, because she has Cystic Fibrosis, she may be the one who needs saving one day. At 6, she already takes more than a dozen pills a day, plus multiple specialty vitamins, an inhaler, a nebulizer, and a unique diet. Amazingly, because she's an only child, she doesn't realize how out-of-the-ordinary this is. She smiles, does what she's asked to do, and she takes care of business.
She knows a little about what having CF means for a kid. What she doesn't know is that, unless progress for a treatment or cure is continued, CF will likely determine the quality and longevity of her precious life.
Thankfully, progress is being made to end CF, but many young lives are still cut too short. Help add tomorrows to the lives of those living with Cystic Fibrosis by donating to our cause. Because it's a good cause. And who knows? You may just save the life of a superhero who will change the world.
With sincerity and thanks,
Melanie and Brian McDonald
(Read below for more information on what, exactly, CF is.)
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF