BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
Thank you for helping me Run 2 Cure CF by donating to the Cystic Fibrosis Foundation! When my sister was born, the life expectancy for a baby with CF was 17 years, but she was sick enough my parents were told she would not make it to Kindergarten - she is now studying for her undergrad in behavioral biology. Today, the life expectancy for a person with CF is in the mid-30s, thanks in large part to the innovative research that the Cystic Fibrosis Foundation has funded. But more work needs to be done!! Thank you for helping me today to add tomorrows for CFers!
Some quick facts:
- Cystic Fibrosis is diagnosed in about 1:2000 individuals of Caucasian descent and is one of the most common inherited diseases
- 1:25 people of Caucasian descent will carry one non-working copy of the gene that causes CF, called CFTR
- I carry a mutation in this gene, which means that my children each have a 50% chance of also carrying a mutation. So not only does this disease affect my sister, but could also affect my grandchildren.