BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
This is our daughter Sofia. Sofia was born with Cystic Fibrosis and is an energetic 8 year old girl who loves to dance, do gymnastics and play with her brother and sister. Cystic fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the ability to breathe.
In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
In the 1950s few children lived long enough to attend school but now because of the amazing work of the Cystic Fibrosis Foundation and supporters like you, Sofia is thriving and doing well. She does lung therapy several times a day and takes numerous daily medications to stay healthy.
We would love for your support so that Sofia and the many others with Cystic Fibrosis can live out their dreams. Today, the Cystic Fibrosis Foundation maintains a robust pipeline of therapies that target CF from every angle, including the root cause of the disease. This is only possible because of supporters like you. Please help us, Dr. Geno and friends raise awareness and funds as they Run for a Cure for the Cystic Fibrosis Foundation. Thank you so much for your support!
CYSTIC FIBROSIS FOUNDATION wrote -
Help Us Find a Cure.
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF
$100 - Kid's Marathon
$200 - 5K
$1,500 - Relay Team
$400 - Half Marathon
$500 - Full Marathon
Fundraising minimums must be met by April 29, 2015. Once you register through Team CF on Crowdrise, within one week you will receive a confirmation e-mail from the Pittsburgh Marathon verifying your registration.
Don't think you can meet your fundraising minimum? Contact Lauren DiMaria at email@example.com or 412-321-4422 to set up your fundraising plan and guarantee your race spot today!
All Run to Cure CF team members will receive*
Run to Cure CF Gender Specific Performance Tee
Volunteer Led Group Training Runs
Coach provided Training Plans and Tips