BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
This year, I will take on my second Pittsburgh Half and this year I will be running as a charity runner for the Cystic Fibrosis Foundation!
Three years ago I ran my first long distance race with my sister, Maria, Alex, and my cousin, Nat. Nat wasn't suppose to run that day, but my other sister, Lauren was hurt and he happily took her registration. While this might seem like an anti-climatic story, Nat has CF and as you now know is a disease which effects your lungs - making activities like running difficult, even impossible. Nat made running 10 miles look easy and he actually beat all of us to the finish line. After running that race with Nat I realized I could do more - physically, mentally, emotionally. Too often we create invisible barriers because we simply think we cannot do something - when in reality, we can. Nat proves that to me and to others every day. Nat has always been active growing up; playing soccer, golf, swimming, guitar, drums - you name it, my aunt and uncle were busy keeping up with him. And in 2013 Nat set out to complete another one of his dreams that many people told him he could never do - he climbed Mt. Kilimanjaro and became the youngest person with CF to reach the summit.
CYSTIC FIBROSIS FOUNDATION
Help Us Find a Cure.
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
More than 45% of the CF patient population is age 18 or older.
The predicted median age of survival for a person with CF is in the late 30s.
The Cystic Fibrosis Foundation
Since 1955, the Cystic Fibrosis Foundation has been the driving force behind the pursuit of a cure. Thanks to the dedication and financial backing of our supporters — patients, families and friends, clinicians, researchers, volunteers, individual donors, corporations and staff, we are making a difference.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF