BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
Help Us Find a Cure for Cystic Fibrosis!
I'm running the Pittsburgh Marathon to raise awareness of CF, to challenge myself, and to show those who struggle with breathing every day- that I understand a little. I want to be a role model for my little brother, who will need to push himself & strengthen his lungs all throughout his life.
Ever since my brother Terry was a week old baby, he was taking medications and getting PT. One of my clearest memories was having to empty a capsule of enzymes onto a tiny spoon of applesauce for him before every bottle feed.. and man, was it a tricky job!
Now he is ten years old. Unlike how my day starts: breakfast, typical hygiene routine followed by "what should I wear?", Terry's has always been swallowing a handful of pills followed by breathing treaments. Then he goes about his routine- which nowadays is picking out his outfit (always a stylish dresser) and slicking back his hair like John Travolta on Grease.
Although a lot has changed, the most important things have stayed the same.
Terry is still the sweetest boy I've ever met. He is still so loving. He is still a cherished son, grand son, nephew, uncle, and he is still one heck of a fighter.
Please consider donating even the smallest amount to help add tomorrows to the lives of those living with CF.
With thanks and appreciation,
Selina & the Duffy clan
So what is this CF she speaks of?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Learn more about Cystic Fibrosis and our chapter: http://wpa.cff.org
Learn more about our Run to Cure CF Program at: http://wpa.cff.org/runtocureCF\