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Deanna Ulrich's Fundraiser:

2017 CYSTIC FIBROSIS FOUNDATION - RUN TO CURE CF PITTSBURGH

Deanna's Photo
Deanna's Photo
Deanna's Photo
 

#CFStrong
March 12, 2017

Aubrie and I in our vests!  See more

BENEFITING: CYSTIC FIBROSIS FOUNDATION

ORGANIZER: CYSTIC FIBROSIS FOUNDATION

EVENT: Pittsburgh Marathon 2017

EVENT DATE: May 07, 2017

Deanna Ulrich

THE STORY:

Cystic Fibrosis is a condition that personally affects my family.  My 10 Year old cousin Aubrie has Cystic Fibrosis.  She was disgonsed shortly after birth.  

 

9 daily medications one of those is Creon.  She takes 48/day, that's 1440/month for one medication alone.  2 inhalers, 2 nebulizer medicines.  She does 4 vest treatments/day, each treatment lasts 30 minues, the vest "shakes" her to loosen the sticky mucus in her lungs so she can cough it out.  "Sticky Mucus" is a major issue for CF patients, the mucus is like stepping on gum and cannot get it off of your shoe.

 

Aubrie has undergone 3 surgeries since birth, including a surgery for a permenant feeding tube.  The feeding tube runs for 10 hours everynight for extra nutrition.  Most CF patients have a hard time gaining weight and low weight affects their lung function.

 

Aubrie has participated in 2 research studies;

    Sodium Chloride which is a nebulizer medication

    Relizorb which is an enzyme for her feeding tube

 

Aubrie is a smart, beautiful, talented young lady!  She is in 4th grade.  Her favorite subject is Science!  When she is not at school she loves to draw, hang out with friends and mimick animal sounds.  In the summer of 2013 Aubrie enjoyed a Make-A-Wish trip to Discovery Cove in Florida to swim with dolphins.  

         

What Is Cystic Fibrosis?

Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

Learn more about Cystic Fibrosis and our chapter:www.cff.org/wpa

 

$1,005

MONEY RAISED
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  • Anonymous

    $100

  • Tauna

    $50

  • Michelle

    $25

  • Cathy K

    $25

  • Ellie Hill

    $10

  • Pahlman Family - Angela, Jason, Gage, Bella & Athena

    $25

  • Lisa

    $50

  • Deanna Ulrich

    $50

  • April

    $20

  • Lavonne

    $25

  • Roffol's Grandkids

    $25

  • Noah Ulrich

    $25

  • Jacob Ulrich

    $25

  • VA Credit Union

    $380

  • Blaine, Nikke & Jakob

    $20

  • Sammie Nahory

    $25

  • Michele Sullivan

    $25

  • Keith Mazzoni

    $100

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  •  
 

101% Raised of $1,000 Goal

The Team: $145,756 TOTAL RAISED SO FAR

Fundraiser Title

Hannah Camic

Amount Raised

$11,499

 

105% Raised of $11,000 Goal

Fundraiser Title

Audrey Burgoon

Amount Raised

$9,145

 

91% Raised of $10,000 Goal

Fundraiser Title

Janice Magee

Amount Raised

$6,641

 

221% Raised of $3,000 Goal

Fundraiser Title

Michael Dishaw

Amount Raised

$5,250

 

53% Raised of $10,000 Goal

Fundraiser Title

Lindsay McIntosh

Amount Raised

$3,461

 

115% Raised of $3,000 Goal

Fundraiser Title

Natalie Olup

Amount Raised

$3,069

 

614% Raised of $500 Goal

Fundraiser Title

John Nee

Amount Raised

$3,020

 

755% Raised of $400 Goal

Fundraiser Title

Patti Raybuck

Amount Raised

$2,735

Donor Comments

Keith Mazzoni

Keith Mazzoni

DONATION: $100

You made your goal!!!!! 6 months ago

Michele Sullivan

Michele Sullivan

DONATION: $25

6 months ago

Sammie Nahory

Sammie Nahory

DONATION: $25

For all the CF warriors! 6 months ago

Blaine, Nikke & Jakob

Blaine, Nikke & Jakob

DONATION: $20

In honor of our Ultimate Warrior Aubrie Mazzoni 6 months ago

VA Credit Union

VA Credit Union

DONATION: $380

6 months ago

Jacob Ulrich

Jacob Ulrich

DONATION: $25

6 months ago

Noah Ulrich

Noah Ulrich

DONATION: $25

6 months ago

Roffol's Grandkids

Roffol's Grandkids

DONATION: $25

6 months ago

April

April

DONATION: $20

6 months ago

Lavonne

Lavonne

DONATION: $25

6 months ago