BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2017
EVENT DATE: May 07, 2017
Ten years ago, I learned what the acronym CF meant. I learned that it stands for a genetic disorder called Cystic Fibrosis. I learned that it is passed from parent to child and impacts lung function and shortens the child's life dramatically.
I didn't learn this at school or by reading books. I learned this because I had a very close friend who, after delivering a beautiful baby boy, learned that there was something wrong, and that her brand new little joy has this disorder.
What I remember most is how terrifying learning this was. It was this big unknown that, after days weeks and months of Google searches and doctors appointments, led to little reassurance and more fear that his life could be cut short.
That was ten years ago...and in the ten years since, I've learned that it is much more than a disorder that affects lung function. I have met incredible people who have lost parents to CF, and who struggle daily themselves with the effects of its symptoms.
I remember one conversation, not too many years ago, with a good friend of mine. She was getting married and thinking about starting a family but she was scared. She lost her mother to CF and knew it was likely she carried the gene to pass it along to any children she may have.
In the ten short years that I have known that a thing called Cystic Fibrosis exists, the Cystic Fibrosis Foundation has been working so incredibly hard to make experiences like those of my friends' less terrifying. They've been improving lives, lengthening lives, and they've been providing access to the right care and the right trials to those who have trouble getting it.
I've personally seen the amazing difference the Cystic Fibrosis Foundation has made for the people that I love and care about affected by CF, and this is why I've decided to Run to Cure CF at the Pittsburgh Half Marathon. Please consider a small donation or sharing this link and help me run to cure CF.
CYSTIC FIBROSIS FOUNDATION wrote -
Our Run to Cure CF team in Pittsburgh continues to grow each year, as do our research efforts and the progress we’ve made in the search for a cure. Real progress toward a cure has been made, but the lives of young people are still cut far too short. Won’t you join us in continuing the search for a cure? Accept the challenge today and help add tomorrows to the lives of those living with cystic fibrosis by registering to run or making a donation to one of our dedicated team members!
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
Learn more about Cystic Fibrosis and our chapter:www.cff.org/wpa