April 17, 2017
BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2017
EVENT DATE: May 07, 2017
My daughter Nicole was diagnosed with cystic fibrosis at the age of 2 1/2 years old. That was back in 1989 when the average life expectancy for someone with CF was 19 years old. Thanks to the amazing medical care she has recieved and the huge advancements in medical research (largely funded by the CF Foundation), Nicole is now 31 years old!
This year I am stepping up my fundraising game and have committed to running 26.2 miles through the streets, bridges and hills of Pittsburgh! I know it will take work and committment and the race will be grueling, but it will pale in comparison to what Nicole and so many others go through every day...
We've made incredible progress in the fight against cystic fibrosis, but we still need to strive to cross that finish line and find a cure!
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.