BENEFITING: CYSTIC FIBROSIS FOUNDATION
ORGANIZER: CYSTIC FIBROSIS FOUNDATION
EVENT: Pittsburgh Marathon 2017
EVENT DATE: May 07, 2017
It seems a bit crazy to me but I have signed up for my first half marathon for the Pittsburgh Half Marathon in May. The good news is that I will be running (walking some?) to benefit a very sweet 4 year old, Natalie Soxman that has Cystic Fibrosis.
My girls dance at Twirl Time Studios and I’ll always be thankful that it led me to meet the wonderful Soxman family. Anyhow, there aren’t a whole lot of people who have Cystic Fibrosis in this world and the cure for it is nearly all dependent on individual fundraising to support research. The amazing news is that at one time, a Cystic Fibrosis patient couldn’t survive past infancy but current median survival is now 39 years.
If you aren’t familiar already (I know I wasn’t before I met the Soxmans’), Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
For Natalie, this means that getting something as small as the common cold can send in her for a hospital stay as the excess mucus production blocks her airways. While she looks just like a normal child, her life is not normal and requires daily time spent with a vest on (2 to 4 times a day, depending whether she is healthy or sick) where it is literally punching her body to try to break up the excess mucus production.
My prayer for Natalie is that the constant strive to increase funding for research will result in a cure for Cystic Fibrosis so that she gets to lead the same healthy, happy and long life that we all hope for our kids.
I am honored to be running for such a worthy cause and greatly appreciate any donation made to help cheer on the cause for the cure for Natalie and all others afflicted with this disease. Thank you so much for your support!