Why I run
December 27, 2017
BENEFITING: Cystic Fibrosis Foundation
ORGANIZER: Cystic Fibrosis
EVENT: 2018 Pittsburgh Marathon
EVENT DATE: May 06, 2018
Aubrie has undergone 3 surgeries since birth, including a surgery for a permanent feeding tube. The feeding tube runs for 10 hours every night for extra nutrition. Most CF patients have a hard time gaining weight. Low weight affects their lung functions.
You may ask, what is Cystic Fibrosis? It is an inherited chronic lung disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000) world wide. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.