March 09, 2018
BENEFITING: Cystic Fibrosis Foundation
ORGANIZER: Cystic Fibrosis
EVENT: 2018 Pittsburgh Marathon
EVENT DATE: May 06, 2018
You all know I love to run! Well, every year that I have participated in the Pittsburgh Half Marathon I’ve thought about running for Cystic Fibrosis…this year I’m finally doing it and am thrilled to run for a great cause!
As many of you know, my younger step-brother, Sean Hughes, was born with CF. While growing up, I never ceased to be amazed by all the time and dedication he put into his treatments. People with CF spend hours a day doing treatments and take literally hundreds of pills a week. As many of you know, Sean had a successful double lung transplant a few years ago. Praise God! God is so faithful and has blessed Sean with good health since. He married his beautiful wife, Samantha, a year ago, and he’s now 26 years old. They just recently moved to South Carolina and are loving the warmer weather! :-)
The life expectancy for someone with CF has more than doubled over the last 30 years, and that’s thanks to all the CF Foundation has raised and put towards amazing medical research and advancements! Fundraising is not typically my comfort zone, but I’m excited to be a part of this team and help raise money for CF!
If you don’t know much about Cystic Fibrosis, take a minute to watch THIS SHORT CLIP to learn about CF’s impact on the near 30,000 children and adults living with CF in the US and 70,000 worldwide. Your donation is going to a great cause!! Thanks!
A note from the Cystic Fibrosis Foundation –
What Is Cystic Fibrosis? Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein cause the body to produce unusually thick, sticky mucus that clogs the lungs, leads to life-threatening lung infections, obstructs the pancreas, and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s, and beyond. Learn more about Cystic Fibrosis and our chapter: www.cff.org/WesternPA