BENEFITING: NATIONAL SAD FOUNDATION
September 30 2016-October 2,2016 The SADS Foundation is holding their 9th Annual International Conference to bring awareness to SADS or Sudden Arrythmia Death Syndrome. Tisha has one of the SADS most rare conditions called Timothy Syndrome, or LQTS8. On Friday, September 30,2016 I will be participating in a special event called Take Steps to STOP SADS. I am hoping to raise $250 that will be donated directly to the SADS Foundation to assisst in: Prevention and Awareness, Patient and Family Support, Medical Education and Research and Advocacy. Please help us raise this support in honor of our precious Tisha who 2 years ago this month, survived and made a miraculous recovery from a Sudden Cardiac Arrest she suffered caused by her SADS condition. That is a moment we never want to relive but we need your kokua! Please support Tisha and all who live with these life threatening conditions...there is much to be learned through research and education and this cannot be done without your support! Tisha sends you her aloha and mahalo for your kokua!!