Safe Maira's Life
Organized by: Sajeeda Begum
EVENT DATE Feb 23, 2016
My Niece Maira Shujath who is one year old is suffering with disease called "Haemophagocytic lymphohistiocytosis"(HLH). She born eight weeks premature, six months later after her birth she felt sick.
As the facilities for diagnosis of this rare disease is not available in India, lot of money is spent for the diagnosis of this disease. Initially doctors could not able to figure out symptoms for this disease, so many tests had been done in India and also blood samples were sent to Germany for lab test before HLH results were positive. When HLH results were positive doctors at lotus hospital located in Hyderabad, India recommended chemotherapy, and bone marrow treatment may or may not be required base on progress of chemotherapy treatment.
Maira has been diagnosed with HLH and currently she is undergoing chemotherapy (Lotus Children’s Hospital, Hyderabad, India) which will continue for 40 weeks as per HLH 2004 Protocol. First dose of chemotherapy was given in November 2015 and after few doses her health deteriorated and treatment was delayed, on basis of her health condition doses where given till now.
For an infant, this chemotherapy dose given every week is a real challenge. By the grace of god Maira responded to this treatment very well and made good progress so far. Based on her present condition doctors now recommended immediate bone marrow as all good cell has been killed and new cells has to be introduce in her body which can be done only through bone marrow.
Bone marrow transplantation facility is not available in the city where chemotherapy treatment is going on and needs to be done in different city at different hospital (Apollo Chennai,India). To get bone marrow treatment an amount of 59 thousand US dollars(USD $59,000) needs to be deposited with the hospital. Till now 30 thousand US dollars has been spent on Maira’s treatment with support of relatives, friends and well-wishers. So far treatment and medical bill payment to the hospital was on weekly basis.
Her parent spent money from all means for her treatment so far and now they can’t afford the treatment alone, need prayers and financial support.
I know its a lot to ask as amount is huge, please donate whatever little you can and pray for her early recovery. Baby Maira has gone through the worst condition in Intensive Care Unit(ICU) during the course of her chemotherapy treatment. Please share this with your friends, family and relatives to support this cause.
Maria needs funds desperately for her treatment. Please help Maira to live in this beautiful world. Please find attached Treatment and complete diagnosis details along with treating Doctor recommendations.
Hospital Name: Lotus Hospital for Childrens, Hyderabad, India.
Doctor Name: Dr. Parag Dekate