Organized by: Urology Team
For the entire six years of his life, Sage has faced hurdles that none of us would care to suffer. When Sage was born with Glycogen Storage Disorder, a disease in which the liver cannot properly control or process the use of glycogen and glucose, Sage underwent a gastrostomy in which a tube was permanently placed in his stomach to provide life-sustaining nutritional support. Unfortunately Sage’s family was unable to provide for his on-going medical needs, so he was placed into the Texas foster care system.
Today Sage is required to wear a small medical backpack each day that automatically feeds nutritional sustenance into his body every 60 minutes. Without this constant flow of nutritional supplementation, Sage’s liver would essentially crash. Sadly, this is a life-long requirement.
Fortunately for Sage, he was placed with foster parents who were determined to help him have a normal life. After seeking medical advice about Sage’s long-term prognosis, his foster parents were advised that Sage would face a lifetime of supplementation unless he was given a liver transplant. Sage’s foster parents approached Medicaid about funding a liver transplant for Sage, and because of their love for him, they also adopted him as their son.
Sage is now waiting for a liver donor and will be treated at the Texas Children’s Hospital in Houston once a liver is found. A match was recently identified for Sage, but, unfortunately, the liver was too large for a six-year-old child so the transplant did not take place.
Although Medicaid will cover the cost of a liver transplant, there are so many more expenses that the family will need to incur once Sage is finally able to receive a new liver. Sage’s parents will be required to leave their home to stay in Houston for at least a month. Consequently, funding will need to be provided to cover travel, hotel and other expenses. Although the prospect of getting a new, and life-changing liver for Sage is hopeful, the costs will quickly surmount for his family.
Sage longs to be like children his own age — not bound to a medical backpack that his life literally depends on. We are now working to help secure the needed funds for Sage’s parents so that they can plan to be in Houston at a moment’s notice when a new liver is found for Sage. We are reaching out to generous individuals everywhere in order to build a nest egg of $10,000 to curb all of the additional out-of-pocket costs that Sage’s parents will face. His parents simply want to be able to stay with their little boy during the estimated month of his recovery, and to adequately cover their costs without incurring debt. We’re looking for generous donors who are willing to help these lovely parents who eagerly adopted Sage and are hoping to give him the life that every little boy deserves.