BENEFITING: Solve ME/CFS Initiative
Thank-you for watching this video from a few years ago. Since then, I had a 9 month period of remission which began and ended mysteriously. It gave me hope that with more medical research, we'll be able to understand the "switch" that can turn off this overwhelming disability...perhaps even in my lifetime.
Since there is negligible government research on ME/CFS, SolveME/CFS annually funds small, scientific, innovative research projects. The organization then helps scientists collaberate and obtain grants from the NIH, Dept. of Defense, pharmaceutical co.'s & foundations for larger studies in subsequent years. Along with thousands of other people, I've signed up to contribute to the SolveCFS Biobank of extensive data for researchers.
The CDC estimates 1-4 million Americans have ME/CFS which “can be as disabling as multiple sclerosis, lupus, rheumatoid arthritis, heart disease, end-stage renal disease… and similar chronic conditions.” However, ME/CFS receives less funding than most very rare diseases.
Thanks to private contributions, I believe that SolveME/CFS will trailblaze breakthroughs and change.
You can send a tax-deductible check offline to: Solve ME/CFS Initiative,
5455 Wilshire Boulevard, Suite 1903
Los Angeles, CA 90036
Sincere thanks to:
SHAUN CALLAHAN of PEPVIDEO, who very patiently and generously helped create this project.
SPEAK UP ABOUT ME's EMPTY CHAIR PROJECT who inspired and enabled me to testify. This group advocates for ME/CFSers with early onset, including bedbound teens.