BENEFITING: Solve ME/CFS Initiative
Thank-you for watching this video from a few years ago. Since then, I had a 9 month period of remission which began and ended mysteriously. It gave me hope that with more medical research, we'll be able to understand the "switch" that can turn off this overwhelming disability...perhaps even in my lifetime.
Since there is almost no government research on ME/CFS, SolveCFS funds 6-8 annual small, scientific, innovative ME/CFS research projects. Significant breakthroughs about ME/CFS, treatments, and biomarkers led to '09-'10 grantees attracting an add't $7 million from the NIH, Dept. of Defense, pharmaceutical co.'s & foundations.
SolveCFS also created a Virtual “Research Institute Without Walls” with the NIH to help scientists collaborate & obtain federal grants for larger studies. Along with thousands of other people, I've signed up to contribute to the SolveCFS Biobank of extensive data for researchers.
The CDC estimates 1-4 million Americans have ME/CFS which “can be as disabling as multiple sclerosis, lupus, rheumatoid arthritis, heart disease, end-stage renal disease… and similar chronic conditions.” However, ME/CFS receives less funding than most very rare diseases. Thanks to private contributions, I believe that SolveCFS will trailblaze breakthroughs and change.
You can send a tax-deductible check to: Solve ME/CFS Initiative, PO BOX 36007, Los Angeles, CA 90036-0007
Sincere thanks to:
SHAUN CALLAHAN of PEPVIDEO, who very patiently and generously helped create this project.
SPEAK UP ABOUT ME's EMPTY CHAIR PROJECT who inspired and enabled me to testify. This group advocates for ME/CFSers with early onset, including bedbound teens.