BENEFITING: St. Baldrick's Foundation
EVENT DATE: Jun 07, 2014
The mission of Sammy’s Superheroes is to raise awareness of all childhood cancers and to fund life-saving research.
I am running in the Kansas City Hospital Hill Half Marathon on June 7th in honor of Sammy's Superheroes. I am asking for anyone else who would like to join me to sign up on the www.active.com website and search for my team "Sammys Superheroes".
All money raised is being donated to St. Baldricks Foundation. The St. Baldrick’s Foundation is a volunteer-driven charity committed to funding the most promising research to find cures for childhood cancers and give survivors long, healthy lives.
On July 30th, 2012, Sammy Nahorny, was diagnosed with Neuroblastoma. Neuroblastoma is a solid tumor of the adrenal system. They had found a large tumor resting above his left kidney. On August 1st, they were able to remove the tumor. We found out that the cancer had spread to near-by lymph nodes, bones (including leg, arm, hips, spine and skull) and bone marrow. The diagnosis was confirmed as Stage 4 high-risk Neuroblastoma. In hindsight, his symptoms started in mid-June. We went to Urgent Care for neck pain and a fever, assumed it was just some virus. On July 11th, we went to the ER for severe abdominal pain and fever. We were thinking appendicitis, but then it resolved. On July 18th, the left leg pain and fever started. Again, we were thinking growing pains or something normal, but after several days my mother’s intuition kicked in. I knew there was something going on, I just didn’t know what. We had an x-ray of his leg on the 23rd, which showed a small dark spot, which could be anything, infection, a cyst… We decided to give it a week to see what came of it. In the meantime, his bloodwork was odd and Doctors questioned Juvenile Rheumatoid Arthritis. Since the fever and pain did not resolve, we did a bonescan on July 30th. Thankfully, they didn’t just look at his leg. The scan was able to identify the tumor above his kidney. Since Neuroblastoma presents as a calcified mass, similar to bone, it showed up on the scan. We were completely shocked. This wasn’t even on the radar. This is how our journey began…
About Sammy’s Superheroes
In August of 2012, some of our closest friends developed Sammy’s Superheroes. They made t-shirts and asked local schools to support Childhood Cancer Awareness Month in September, by having “blue out” football games, where players, coaches, students and fans bought and wore blue Sammy’s Superheroes t-shirts, with all funds to be donated to childhood cancer research.
In the process of researching agencies to donate to, we were shocked and horrified by the information we learned. For example, while childhood cancer is the number one cause of death by disease in children, pediatric AIDS receives four times the amount of funding! There were several statistics that shocked us and solidified our resolve to make a difference, not only for Sammy, but for ALL the children fighting this horrible disease.