BENEFITING: Dysautonomia International
EVENT DATE: May 07, 2016
We are participating in the 2016 POTS Walk and 5K alongside our daughter and sister, Eliza, who suffers with POTS (Postural Orthostatic Tachycardia Syndrome). POTS is a disorder of the autonomic nervous system. The autonomic nervous system is responsible for regulating many systems in our bodies including heart rate and blood pressure.
Eliza fights an incredibly difficult chronic disease that impacts the lives of approximately 1-3 million Americans every day. Although Eliza is now strong enough to be an honor roll student at Trinity College, many families are not as lucky to see their daughter or sister go to school because of POTS.
On May 7 we will walk not only in memory of Christina Tournant, but in honor of Eliza and all the people around the world fighting this difficult disease. We hope to raise awareness and funds to find a cure for this disease.
Many talented doctors helped diagnose and treat Eliza and we are eternally grateful for their assistance. However, many doctors are unfamiliar with POTS, which makes getting a diagnosis and proper treatment extremely difficult. Unfortunately, there is little that doctors understand about POTS and a lack of funding for ongoing research. The money raised during this year’s event will be donated to Dysautonomia International to support ongoing POTS research.
Eliza’s continued strength never ceases to amaze us! Her journey has not been an easy one and she continues to live each day with grace and perseverance.
We so greatly appreciate your consideration in support of this cause.
Sandy, George, and Kyle Marsh