BENEFITING: THOMAS JEFFERSON UNIVERSITY
Stiff Person's Syndrome is a one-in-a-million disease and is incredibly misunderstood. In fact, I had never heard of this disease until I began taking care of my client, Sandy. I am a CAREGiver, and I was asked to take on Sandy as a client in May of 2013, and at first I was hesitant to because she is a former surgeon (kind of intimidating to someone with a medical background, now CAREGiver).
I am certainly glad that I decided to because she has become such a strong, positive influence in my life, and her story is so compelling and inspiring.
Throughout her life and career, Sandy has strived to make a difference in people's lives by way of performing life-saving operations, or just by giving back to her community. You wouldn't believe some of the great things she has done to help and inspire others!
When she was struck with this illness, her life was dramatically altered. She went from doctor to patient, and has lost the ability to continue doing things that many of us take for granted (like, WALKING).
With that being said, I decided one day that I was tired of seeing her suffer, and I wanted to know that somehow, someone was searching for some answers to this disease, because currently there is no cure.
THIS IS WHY I AM STARTING THIS FUNDRAISER, TO FUND THE ONE AND ONLY DOCTOR IN THE COUNTRY, CURRENTLY DOING RESEARCH FOR STIFF PERSON'S SYNDROME
PLEASE, find it in your heart to donate, your support means everything to us!