We are trying to raise money to get our non-profit up & running so that we may help other families with children with Sanfilippo Syndrome.
Little Aiden Lopez lost his life to this horrible disease at the age of 2 1/2 Jan. 9, 2011. Sanfilippo is a disease most people have never heard of. It is debilitating & devestating to the children & their families. There is no cure. What's worse, ins. companies often refuse to cover these children. When the worst happens & the parents lose their child on top of their grief they have to deal with having to pay for final expenses out of their own pockets. This is a travesty. This is the reason for us creating Aiden's Courageous Footsteps. Little Aiden's legacy will be to in helping other families dealing with the illness. We want to raise funds through our organization to support these families in their time of need. We need money to get everything off the ground. Thank you for reading & considering helping us.