I will be crossing a major item off my bucket list by running my very first marathon on November 6th and decided I will be running the marathon for the Children's Tumor Foundation's Neurofibromatosis (NF) Endurance Team.
Training for a marathon can be grueling and time consuming but it was my choice and knew that being healthy I am capable of putting in the hours to make my dream come true. But what about the people that work just as hard to get through their everyday life? I'm running to honor those people.
My friend, Marisa, was diagnosed with Neurofibromatosis and through doctors appointments, surgeries, treatments, pain and loss of the use of one of her arms she continues to face everyday with a bright smile. She continues to adapt to her condition and to travel the world as a photographer at Sundance Film Festival, at an education center in Guatemala, and recently at an event at the White House. She exudes positivity despite having NF and having recently lost her mother to cancer.
If you want to learn more about Neurofibromatois or the Children's Tumor Foundation read below or please visit their website at http://www.ctf.org.
Please consider donating my goal is to raise $500 for the foundation.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.