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Amy and Michael Chang's Fundraiser:

Kawasaki Disease Challenge

Amy and Michael's Photo
Amy and Michael's Photo
Amy and Michael's Photo

BENEFITING: Kawasaki Disease Foundation

ORGANIZER: Sarah

EVENT: RYOT

Amy and Michael Chang

THE STORY:

Sarah Chalke wrote -

This is a fundraiser for a test that could save kids hearts and lives.

 


I can't put into words how scary it is to see your baby sick and not know what is wrong with him, have doctors not know what is wrong with him and have a different diagnosis every day. Kawasaki Disease (KD) is the leading cause of acquired heart disease in children. Once they get sick, you have a ten day window to get the treatment to save their heart, but children often get misdiagnosed.  When my son had Kawasaki Disease and was misdiagnosed for ten days, I can’t tell you how many times I said, “I just wish there was a test. A test that could tell us if this is KD.”

And now there might be.  A team of doctors at Stanford University and UCSD have devised a prototype for a diagnostic test. This is a huge deal. This test could be 95% accurate but it needs to be tested for two years before it can be used. We NEED this test because of the ticking clock to get treatment to prevent heart damage that can lead to a heart attack.

It is difficult to get funding, even for a serious childhood disease. Today I am asking you to join me in raising the funds to run a two year trial of the diagnostic test.  Now is the time to donate-The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar we raise!

With this test, no parent will have a sick child with Kawasaki Disease and wonder what it is; no child will have silent heart damage that can cost them their life.

Let’s save some little hearts.

NOTE: IF YOU WANT TO KNOW THE SYMPTOMS TO LOOK OUT FOR...Go to kdfoundation.org to learn more, the website that saved my son. This was the website we went to every day that kept us fighting to see a specialist.

IF YOU ARE A KD SURVIVOR... you can help. There is little information known about the long term effects of Kawasaki Disease, whether there was lasting heart damage or not.  One of the leading researchers is doing a study on this and needs participants.  Email Dr. Jane Burns at Adultkd@ucsd.edu to be part of the study. 

Thank you. So. Much.

To see Sarah on Huff Post Live, please click here.  Watching the video is a great way to learn about the cause.

DONATE

To This Fundraiser

$8,695

MONEY RAISED
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  • Amy and Michael Chang

    $1,000

  • Jen & Jerry

     

  • The Schwope Family

     

  • Lissette

    $100

  • Jennie Wong

     

  • Ryan M

     

  • Ryan Bailes

    $100

  • Eve D

     

  • Andy Brummer

     

  • Christine Tsu

     

  • Elizabeth Gunning

    $50

  • Brian Lee

    $150

  • Aliana Spungen

    $200

  • Diana Berkery

     

  • JuJu and YeeYee

    $300

  • Danielle and James

    $200

  • Mui family

    $100

  • Adam and Lauren Schwartz

     

  • Jane Ross

    $200

  • Gerry and Laura Walker

    $500

  • Maureen Chang

    $200

  • Teresa and Ignatius Chang

    $300

  • Matt Lazar

    $100

  • Anonymous

    $200

  • Harish Nataraj

    $250

  • CAROLINE AND DAVID MUREN

     

  • Mark Schneider

     

  • SCOTT CHESTMAN

    $250

  • peter yune

    $200

  • Dave R

    $250

  • John and Eileen Landrum

    $100

  • The Sweetie Pig Foundation

    $500

  • Cirullo Family

    $50

  • Shore Family

    $100

  • Trevor & Christina Winstead

    $100

  • Charles & Emma Laplante

     

  • Amy & Jason Black

     

  • Carla Shen & Chris Schott

     

  • Janet Roulac

    $100

  • Wilson Leung & Kai Yee Lee

    $250

  • Mike Casino

     

  • Ben Langworthy

    $200

  • Leon Ramcharran

    $50

  • Kevin Sklar

    $50

  • Steve & Maria Rosenthal

     

  • Josh Givelber

    $50

  • Stern Family

     

  • Joe and Kate Stanley

     

  • Leisman Family

    $25

  • Marc and Lori Lavine

    $250

  • Sarah McLean and John Tsien

     

  • Crystal McKellar

    $200

  • David Crall

    $100

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174% Raised of$5,000 Goal

Fundraise for this Campaign

The Team: $249,709 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Chalke

Amount Raised

$212,341

 

212% Raised of$100,000 Goal

Fundraiser Title

Amy and Michael Chang

Amount Raised

$8,695

 

174% Raised of$5,000 Goal

Fundraiser Title

Don't STOP the BEAT

Amount Raised

$5,018

Fundraiser Title

Don, Brooke and Patty Dawn

Amount Raised

$4,975

Fundraiser Title

Anna Lillian

Amount Raised

$1,500

Fundraiser Title

Eva OKeefe

Amount Raised

$1,355

Fundraiser Title

The Chin Family

Amount Raised

$1,300

Fundraiser Title

Jen She

Amount Raised

$1,145

 

57% Raised of$2,000 Goal

Donor Comments

David Crall

David Crall

DONATION: $100

6 years ago

Crystal McKellar

Crystal McKellar

DONATION: $200

6 years ago

Sarah McLean and John Tsien

Sarah McLean and John Tsien

So glad Dylan is OK! 6 years ago

Marc and Lori Lavine

Marc and Lori Lavine

DONATION: $250

Thank you for doing such important work! 6 years ago

Leisman Family

Leisman Family

DONATION: $25

6 years ago

Joe and Kate Stanley

Joe and Kate Stanley

Amy and Mike, We are so happy to hear that Dylan responded well to his treatment and has recovered. We imagine that this was a very scary and stressful time for you and your family. Hopefully the two year trial will help better identify and prevent Kawasaki disease. All our best, Joe and Kate Stanley 6 years ago

Stern Family

Stern Family

6 years ago

Josh Givelber

Josh Givelber

DONATION: $50

6 years ago

Steve & Maria Rosenthal

Steve & Maria Rosenthal

6 years ago

Kevin Sklar

Kevin Sklar

DONATION: $50

6 years ago