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The Chin Family's Fundraiser:

Kawasaki Disease Challenge

The Chin's Photo
The Chin's Photo
The Chin's Photo

BENEFITING: Kawasaki Disease Foundation

ORGANIZER: Sarah

EVENT: RYOT

The Chin Family

THE STORY:

Sarah Chalke wrote -

Promotion: Set Up Your Fundraiser and raise at least $500 from 6/3 at 12:00pm ET to 8/1 at 12:00pm and you will automatically be entered to win 2 Tickets to the To Save A Child's Heart ~ Celebrity Chefs Cooking for KD Gala on November 9, 2013 at the Hilton La Jolla Torrey Pines.

See below for rules.

This is a fundraiser for a test that could save kids hearts and lives.

I can't put into words how scary it is to see your baby sick and not know what is wrong with him, have doctors not know what is wrong with him and have a different diagnosis every day. Kawasaki Disease (KD) is the leading cause of acquired heart disease in children. Once they get sick, you have a ten day window to get the treatment to save their heart, but children often get misdiagnosed.  When my son had Kawasaki Disease and was misdiagnosed for ten days, I can’t tell you how many times I said, “I just wish there was a test. A test that could tell us if this is KD.”

And now there might be.  A team of doctors at Stanford University and UCSD have devised a prototype for a diagnostic test. This is a huge deal. This test could be 95% accurate but it needs to be tested for two years before it can be used. We NEED this test because of the ticking clock to get treatment to prevent heart damage that can lead to a heart attack.

It is difficult to get funding, even for a serious childhood disease. Today I am asking you to join me in raising the funds to run a two year trial of the diagnostic test.  Now is the time to donate-The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar we raise!

With this test, no parent will have a sick child with Kawasaki Disease and wonder what it is; no child will have silent heart damage that can cost them their life.

Let’s save some little hearts.

NOTE: IF YOU WANT TO KNOW THE SYMPTOMS TO LOOK OUT FOR...Go to kdfoundation.org to learn more, the website that saved my son. This was the website we went to every day that kept us fighting to see a specialist.

IF YOU ARE A KD SURVIVOR... you can help. There is little information known about the long term effects of Kawasaki Disease, whether there was lasting heart damage or not.  One of the leading researchers is doing a study on this and needs participants.  Email Dr. Jane Burns at Adultkd@ucsd.edu to be part of the study. 

Thank you. So. Much.

To see Sarah on Huff Post Live, please click here.  Watching the video is a great way to learn about the cause.

 

Rules: Gala

DONATE

To This Fundraiser

$1,300

MONEY RAISED
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  • The Chin Family

    $1,000

  • Deb Perkins

    $100

  • Doug & Pat Watson

    $100

  • Chip Perkins

    $100

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Fundraise for this Campaign

The Team: $249,709 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Chalke

Amount Raised

$212,341

 

212% Raised of$100,000 Goal

Fundraiser Title

Amy and Michael Chang

Amount Raised

$8,695

 

174% Raised of$5,000 Goal

Fundraiser Title

Don't STOP the BEAT

Amount Raised

$5,018

Fundraiser Title

Don, Brooke and Patty Dawn

Amount Raised

$4,975

Fundraiser Title

Anna Lillian

Amount Raised

$1,500

Fundraiser Title

Eva OKeefe

Amount Raised

$1,355

Fundraiser Title

The Chin Family

Amount Raised

$1,300

Fundraiser Title

Jen She

Amount Raised

$1,145

 

57% Raised of$2,000 Goal

Donor Comments

Chip Perkins

Chip Perkins

DONATION: $100

6 years ago

Doug & Pat Watson

Doug & Pat Watson

DONATION: $100

6 years ago

Deb Perkins

Deb Perkins

DONATION: $100

I'd give to any cause that could help a child like Taylor grow into a healthy man and an awesome roommate for Clark! 6 years ago

The Chin Family

The Chin Family

DONATION: $1,000

In honor of all of the children, families and supporters who donated so generously to KD research before our son had KD in 1998. If not for their support and commitment to the cause, our son may not have had the positive outcome he experienced. We hope to make a similar difference to future children and families. Thanks to Sarah Chalke for her leadership in taking up this challenge. ~ Cassie, Taylor, Merril & Greg Chin 6 years ago