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Don't STOP the BEAT's Fundraiser:

Kawasaki Disease Challenge

Don't STOP the's Photo
Don't STOP the's Photo
Don't STOP the's Photo

BENEFITING: Kawasaki Disease Foundation

ORGANIZER: Sarah

EVENT: RYOT

Don't STOP the BEAT

THE STORY:

Sarah Chalke wrote -

This is a fundraiser for a test that could save kids hearts and lives.

I can't put into words how scary it is to see your baby sick and not know what is wrong with him, have doctors not know what is wrong with him and have a different diagnosis every day. Kawasaki Disease (KD) is the leading cause of acquired heart disease in children. Once they get sick, you have a ten day window to get the treatment to save their heart, but children often get misdiagnosed.  When my son had Kawasaki Disease and was misdiagnosed for ten days, I can’t tell you how many times I said, “I just wish there was a test. A test that could tell us if this is KD.”

And now there might be.  A team of doctors at Stanford University and UCSD have devised a prototype for a diagnostic test. This is a huge deal. This test could be 95% accurate but it needs to be tested for two years before it can be used. We NEED this test because of the ticking clock to get treatment to prevent heart damage that can lead to a heart attack.

It is difficult to get funding, even for a serious childhood disease. Today I am asking you to join me in raising the funds to run a two year trial of the diagnostic test.  Now is the time to donate-The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar we raise!

With this test, no parent will have a sick child with Kawasaki Disease and wonder what it is; no child will have silent heart damage that can cost them their life.

Let’s save some little hearts.

NOTE: IF YOU WANT TO KNOW THE SYMPTOMS TO LOOK OUT FOR...Go to kdfoundation.org to learn more, the website that saved my son. This was the website we went to every day that kept us fighting to see a specialist.

IF YOU ARE A KD SURVIVOR... you can help. There is little information known about the long term effects of Kawasaki Disease, whether there was lasting heart damage or not.  One of the leading researchers is doing a study on this and needs participants.  Email Dr. Jane Burns at Adultkd@ucsd.edu to be part of the study. 

Thank you. So. Much.

DONATE

To This Fundraiser

$5,018

MONEY RAISED
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  • Don't STOP the BEAT

    $1,000

  • Carson O'Neill

    $10

  • Julie, Beppe and Lily

    $50

  • Richard and Dianne Nevius

    $20

  • Don't STOP the BEAT

    $1,500

  • Don't STOP the BEAT 5k funds

    $2,000

  • Anonymous

    $10

  • Don't STOP the BEAT

    $428

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Fundraise for this Campaign

The Team: $249,709 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Chalke

Amount Raised

$212,341

 

212% Raised of$100,000 Goal

Fundraiser Title

Amy and Michael Chang

Amount Raised

$8,695

 

174% Raised of$5,000 Goal

Fundraiser Title

Don't STOP the BEAT

Amount Raised

$5,018

Fundraiser Title

Don, Brooke and Patty Dawn

Amount Raised

$4,975

Fundraiser Title

Anna Lillian

Amount Raised

$1,500

Fundraiser Title

Eva OKeefe

Amount Raised

$1,355

Fundraiser Title

The Chin Family

Amount Raised

$1,300

Fundraiser Title

Jen She

Amount Raised

$1,145

 

57% Raised of$2,000 Goal

Donor Comments

Don't STOP the BEAT

Don't STOP the BEAT

DONATION: $428

Some final funds from the 5k. Over $10,000.00 also sent directly to KDF!!! Great job everyone!!!! Thanks for all your hard work! Jen 6 years ago

Anonymous

ANONYMOUS

DONATION: $10

6 years ago

Don't STOP the BEAT 5k funds

Don't STOP the BEAT 5k funds

DONATION: $2,000

Thanks everyone for the support and helping to spread awareness!!! Jen 6 years ago

Don't STOP the BEAT

Don't STOP the BEAT

DONATION: $1,500

To all our KD survivors that joined us on race day and those in memory of! We thank you. Owen Grant, Kristopher Bodie, Beau Hanson, baby Andi, Kelsey McMurty, Caleb Cooper, Joey Lucas, Whitney Peters, Manny Sierra, Brandon Gambler, April Toone, Reese Brown, Elliot VanEvery and in memory of Cal Page. xoxox 6 years ago

Richard and Dianne Nevius

Richard and Dianne Nevius

DONATION: $20

Carson, keep up the good fight. You are quite a little man. 6 years ago

Julie, Beppe and Lily

Julie, Beppe and Lily

DONATION: $50

Supporting little hearts! Way to go TEAM Don't Stop the Beat!! 6 years ago

Carson O'Neill

Carson O'Neill

DONATION: $10

To the brave and loving family of little Carson O'Neill, never give up hope, he will grow up to be the most amazing human being, and you are going to be so proud. 6 years ago

Don't STOP the BEAT

Don't STOP the BEAT

DONATION: $1,000

Don't STOP the BEAT is in honor of Owen Grant who was just 3 months old when he was diagnosed with Kawasaki Disease. Our upcoming 5k has raised $10,000 for the KD Foundation to date and still going. We'd like to THANK everyone who is working hard to make a difference for little hearts. 6 years ago