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Danielle DeMarco DAleo's Fundraiser:

Sarah Chalke: Kawasaki Disease

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Danielle DeMarco DAleo

THE STORY:

Sarah Chalke wrote -

This is a fundraiser for a test that could save kids hearts and lives.


I can't put into words how scary it is to see your baby sick and not know what is wrong with him, have doctors not know what is wrong with him and have a different diagnosis every day. Kawasaki Disease (KD) is the leading cause of acquired heart disease in children. Once they get sick, you have a ten day window to get the treatment to save their heart, but children often get misdiagnosed.  When my son had Kawasaki Disease and was misdiagnosed for ten days, I can’t tell you how many times I said, “I just wish there was a test. A test that could tell us if this is KD.”

And now there might be.  A team of doctors at Stanford University and UCSD have devised a prototype for a diagnostic test. This is a huge deal. This test could be 95% accurate but it needs to be tested for two years before it can be used. We NEED this test because of the ticking clock to get treatment to prevent heart damage that can lead to a heart attack.

 

It is difficult to get funding, even for a serious childhood disease. Today I am asking you to join me in raising the funds to run a two year trial of the diagnostic test.  Now is the time to donate-The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar we raise!

With this test, no parent will have a sick child with Kawasaki Disease and wonder what it is; no child will have silent heart damage that can cost them their life.

Let’s save some little hearts.

NOTE: IF YOU WANT TO KNOW THE SYMPTOMS TO LOOK OUT FOR...Go to kdfoundation.org to learn more, the website that saved my son. This was the website we went to every day that kept us fighting to see a specialist.

IF YOU ARE A KD SURVIVOR... you can help. There is little information known about the long term effects of Kawasaki Disease, whether there was lasting heart damage or not.  One of the leading researchers is doing a study on this and needs participants.  Email Dr. Jane Burns at Adultkd@ucsd.edu to be part of the study. 

Thank you. So. Much.

To see Sarah on Huff Post Live, please click here.  Watching the video is a great way to learn about the cause.

DONATE

To This Fundraiser

$175

MONEY RAISED
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  • Samantha Pomarico

    $25

  • Danielle DeMarco DAleo

    $100

  • Anonymous

    $25

  • Michelle Musca

    $25

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Fundraise for this Campaign

The Team: $78,996 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Chalke

Amount Raised

$73,542

Fundraiser Title

Jenn Lau Phillips

Amount Raised

$2,010

Fundraiser Title

John Baker

Amount Raised

$985

Fundraiser Title

Vanessa Gutierrez

Amount Raised

$755

Fundraiser Title

Ethan Frank

Amount Raised

$249

 

21% Raised of $1,200 Goal

Fundraiser Title

Carissa King

Amount Raised

$225

 

113% Raised of $200 Goal

Fundraiser Title

Carson ONeill

Amount Raised

$177

Fundraiser Title

John de Geus

Amount Raised

$175

Donor Comments

Michelle Musca

Michelle Musca

DONATION: $25

For my friend Mia and godson Joseph 5 years ago

Anonymous

ANONYMOUS

DONATION: $25

Hi Danielle, I didn't know that Mia went through this. I am glad she is full recovered! -Kat 5 years ago

Danielle DeMarco DAleo

Danielle DeMarco DAleo

DONATION: $100

For my baby girl Mia who made a full recovery! This cause is close to my heart.......my daughter was diagnosed a year and a half ago at just 20 months old. I am thrilled to say she is doing great! This disease is hard to diagnose and timing is critical for treatment. Funding is needed for a diagnostic test that currently doesn't exist. Thank you for taking the time to read this and for any support you can provide! 5 years ago

Samantha Pomarico

Samantha Pomarico

DONATION: $25

5 years ago