BENEFITING: The Foundation for Faces of Children
EVENT: Paces for Faces 2016
EVENT DATE: Sep 25, 2016
On January 28, 2016 our Cleft Cutie, Niko was born with a unilateral cleft lip. This was completely unexpected and came as a total shock to my husband and I. We were devastated upon first learning of his cleft lip due to the surgeries that would be in store for him. We had next to no information and were left to gather as much information on our own as we could.
My emotions ranged from shock to sadness to devastation to fear and worry. If I could tell my pregnant self what I now know, I would tell her that it is all going to be OK and it is not worth all the worry!
We immediately fell in love with Niko’s wide smile and I shed tears every day as his surgery is fast approaching, knowing that I will have to say good-bye to that smile that I fell in love with. However, I feel very lucky because only Cleft Mommies and Daddies get to experience falling in love with 2 smiles!!
We wanted the best of the best to perform Niko’s surgery. It wasn’t until I met with Dr. Mulliken and his nurse in my 7th month of my pregnancy that I was finally able to relax. They eased me of all my worries and fears. They normalized all of the concerns that I was having and made me realize that it all was going to be OK!
Niko is almost 6 months old and had his lip/nose repair 2.5 weeks ago. We feel incredibly fortunate to be able to get the best care for Niko at Boston Children’s Hospital. Dr. Mulliken and his nursing staff have been AMAZING so far!
Niko has proven to be tough as nails already and we have no doubt he will continue to be our little warrior.
We are participating in this fundraiser because we want to give back and make sure that other children who are born with these conditions can get the treatment that they all deserve. We want to raise awareness and educate people on this issue because cleft lip/palate is one of the leading birth defects in America.
1 in 700 babies will be born with a cleft lip and/or cleft palate. Our sweet Niko is 1 in 700 and Cleft Strong…or as we have named our team, Nikostrong!
Please join us this year in our first “Paces for Faces” walk! We hope that you can join us for Team Nikostrong this year, either in person and walk with us or by making a contribution to this cause which is very near and dear to our hearts!
Your contributions to the “Paces for Faces” walk will directly support the following Foundation For Faces initiatives:
1) The Annual Scholarship Awards Program recognizes young adults from New England who were born with a facial difference and assists them in their pursuit of a post-secondary education.
2.) Foundation for Faces is also committed to providing useful, accurate information in the form of DVD’s and brochures for new parents. Upon our first meeting with Dr. Mulliken we received these DVD’s and they were so helpful to us.
Thank you for your support!